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I'm so happy to hear that your daughter is doing well and that she is a high achiever...I was as well! I know she will go far in life. I went to Deer Park ISD but any of the big suburban school districts would be better than Houston ISD. Kingswood, Friendswood, The Woodlands, Katy, and Cy-Fair...

rose, I'm so glad to hear you say that about your son! Also, I can completely understand why you wouldn't want medical things posted on FB. I hate FB and wish it would disappear actually...nothing good ever seems to come from it. I never really thought about posting my CF on FB but I can see...

Rebjane, I am 28 years old, born and raised in Houston. I also went to public school in one of the suburban school districts. 1. YES! The schools are indeed air conditioned with central air...during the hot months of the year temps can reach 100 degrees with 85 to 100% humidity at times. Even...

Hi apiciz7, I was born and raised here in Houston and I have been going to the Adult CF Center at Baylor College of Medicine for about 8 years now. I used to go to Texas Children's but they kicked me out when I turned 21 and I was very hesitant and nervous about switching to the adult center but...

I just turned 28 about a week ago and I weigh more now than I have ever weighed in my life! I know that's supposed to be a good thing for a CF'er, especially when I've had a feeding tube in the past, but I feel like my weight gain is out of control. I'm 5'3"ish and weigh about 130lbs. I've...

The whole point of Facebook is to share our lives with the world, correct? If you don't want people posting anything on their FB pages from your FB page, then don't have a FB page at all. Honestly, I wish more people would censor what they put on FB. But I have to ask...what's the difference...

I've been dealing with CF for almost 28 years now and I would have to say that somebody posting on Facebook about your child having CF should be the least of your worries. And I would have to agree with your family about this. You should want people to know about your son's CF so they may pray...

I am a geologist by education but I work as a Seismic Data Specialist and it's great. I work 9/80's which yield a long day (I'm up at 5am, at work by 6:20am, leave at 4:20pm and home by 5:10ish) but I have every other Friday off which is really nice to catch up on sleep or go to doctor...

baco, I had the same problem you are having right now after I graduated college. Everyone seemed to be so negative about everything with me...and my parents were the worst about it! It was a constant battle with everyone. I had just spent the past 5 years of my life fighting to graduate from...

Is there any new update or information on the VX-809 drug for people with the DF508 mutation?

Is there any new update or information on the VX-809 drug for people with the DF508 mutation?

Is there any new update or information on the VX-809 drug for people with the DF508 mutation?

My name is Danielle I am a 25 year old female I live in the great state of Texas I am the only one in my family that has beenblessed with CF (DF508) (FEV1=~70-75%) I define CF, it does NOT define ME (although it has made me a very strong person, that's why I see it as a blessing) I have a...