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    How many women.....

    I am the creator of the aforementioned website. Thanks Julie and Melissa for the references. What Eileen, Melissa and Emilee all said can be true. What has been discovered in research is that the current trend of your health is unaffected by a pregnancy if your disease is in the "mild" or...
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    Bleeding in lungs & periods coincide

    There was an article in the CF Roundtable a couple of years ago that addressed this. You can go to <A href="http://www.cfroundtable.com">www.cfroundtable.com</A> and look at the list of back issues. It was the issue with the focus topic "Women Only or Men Only Issues". If you can look that up...
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    cleaning

    You can hang your mop (whether sponge or rag) outside in the sunshine to dry. Sunshine will kill most anything. You can boil a rag mop or microwave a sponge (mop or scrubbing sponge - about 15-20 seconds on HIGH). I posted some cleaning solutions recipes on another thread here called "Safe...
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    Clorox disinfecting spray

    You can use a solution of grapefruit seed extract or tea tree oil (a few drops of GSE or TTO) or vinegar (half a cup or so) in a spray bottle of water. These are OK for the skin and are all anti-microbial. This is much better than spraying a bleach compound into the air of your home. Remember...
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    Questions....

    It is unusual, but there is such a thing as an atypical presentation, meaning that the person has CF genetically and in practice, but doesn't show up on a sweat test. Do the sweat test first. It is painless, non-invasive and still considered the "gold standard" in many places. If that comes back...
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    New baby with CF...

    <STRONG>To Jen - </STRONG>Drop me an email at <A href="mailto:jaloughlin3@sbcglobal.net">jaloughlin3@sbcglobal.net</A>. I have several mothers who have given birth vaginally without complication to babies with CF. I also have contact with some midwives who have assisted the delivery of babies...
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    Books on CysticFibrosis

    I second the suggestion of "The Spirit of Lo". I would also recommend subscribing to the CF Roundtable (<A href="http://www.cfroundtable.com">www.cfroundtable.com</A>). It is not a book, but a quarterly publication for and by adults with CF. I've gotten lots of inspiration, ideas and input from...
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    Yeast Infections

    Check out <A href="http://www.geocities.com/MurrensNatureMama/wellness">www.geocities.com/MurrensNatureMama/wellness</A> Scroll down to Yeast Overgrowth/Infection. There are lots of suggestions there for treating yeast. These are VERY effective in prevention, catching it in the first stages and...
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    childhood vaccinations

    Unless your doc is a D.O., it would be very unusual for him/her not to recommend all the vaccinations without caveat. Unfortunately, they get pressured (and in some instances, paid) to advise and administer them. It can be career suicide to suggest partially vaccinating or refusing vaccination...
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    CF athletes

    I'd love to see a swim meet or some other competative sport situation raise money for CF. That'd be awesome. It might help Kathy (seasonsoflove) if we put it in terms like they do with the special olympics - meaning that everybody does the best they can. Just like with Great Strides, you can...
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    childhood vaccinations

    I forgot to mention that there is also a good book that has a really good, thorough section on vaccines. It includes the history of each vaccination and the timetables for irradication of the disease, indications/contraindications for each of the vaccines and information about the risks of each...
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    ?? for those of you on SSDI

    There are new drug coverage plans coming in 2006 to Medicare recipients. This will affect you because you will be covered after the start date. This will help you. I, too, have BC/BS coverage that I buy for myself. I chose the highest deductible ($5,000) so they won't cover any hospital or...
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    So Tired

    Vanessa, if your doctor actually told you that your PFTs would drop significantly because of pregnancy and no other reason, he is VERY misinformed. This is NOT backed up by ANY current scientific research. I have built a website around current, accurate information regarding parenthood for...
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    Breastfeeding & Emotions

    Just for clarification, it isn't a contest to see who can breastfeed the longest. The goal is to meet your baby's needs in the way the baby needs them met. It isn't about what *I* want or do or what is "normal" or "odd". Julie is right. Some children need to be breastfed longer than what we...
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    any alternates to sugar filled pedialyte

    Check out Reliv. It has worked wonders for us. You can use the Innergize alone in water (there are several flavors) as a hydrator/electrolyte balancer, superior to Gatorade. Make sure Ethan is well-hydrated before you use other supplements because dehydration causes your body not to be able to...
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    Port Placement Options

    My port is about the diameter of a quarter. I can access it if I have to, but it is easier for my husband to do it as he has a better line of sight. I have never had any problems with this one. I tried to have my second one placed in the same spot as my first (where Emily's is), but there was...
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    A poem I wrote (transplant, B. cepacia related)

    yes, transparent. Meaning, one gets the feeling when reading that piece that one is looking right into his heart and seeing the true emotions and thoughts. As in, not contrived, not story-telling, not playing a character.
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    Hypertonic Saline

    You can make saline at home and yes it is sterile. In order to get the salt to actually combine with the water you boil them. Boiling kills any germs. I am still trying to locate the recipe that tells how much salt to how much water for the percentages. I haven't needed to do it in a while (and...
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    What do you do?

    I want to clarify my previous post. I came across very strongly because I feel very strongly, but I do want to be clear on this: I believe in the importance of caring for yourself. I know that if we are not healthy (physically, emotionally, spiritually) we are not as good to our families. I also...
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    Breastfeeding & Emotions

    Like I mentioned above, I breastfed my daughter for 2 years and 7 months. I didn't have any problem adding food to her diet, in fact she initiated it. Nor have I had any problems with her being "clingy". We are close, but she doesn't fear other family members, friends or new people (like my...
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