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(I posted this in other categories as well-but wanted to let everyone know) Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in...

(I posted this in other categories as well-but wanted to let everyone know) Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in...

(I posted this in other categories as well-but wanted to let everyone know) Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in...

(I posted this in other categories as well-but wanted to let everyone know) Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in...

Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in medical bills. We struggle with wanting me to be home full-time with my son or...

Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in medical bills. We struggle with wanting me to be home full-time with my son or...

Hi Everyone! I have not been on the site for awhile. I have been busy with Holiday stuff. But I wanted to let everyone in on a stay at home job I came across. If you are like me and my husband we are drowning in medical bills. We struggle with wanting me to be home full-time with my son or...

This kind of crap has happened to us at least once. It makes me SOOOOO angry. Since when do children only need a PICC line with sedation Mon-Fri, 8am-5pm. That is the part that has always thrown me. At our childrens hospital we have 2 freakin picc nurses and guess what-Mon-Friday 8am-5pm is...

This kind of crap has happened to us at least once. It makes me SOOOOO angry. Since when do children only need a PICC line with sedation Mon-Fri, 8am-5pm. That is the part that has always thrown me. At our childrens hospital we have 2 freakin picc nurses and guess what-Mon-Friday 8am-5pm is...

This kind of crap has happened to us at least once. It makes me SOOOOO angry. Since when do children only need a PICC line with sedation Mon-Fri, 8am-5pm. That is the part that has always thrown me. At our childrens hospital we have 2 freakin picc nurses and guess what-Mon-Friday 8am-5pm is...

I am sorry you and your husband are having a difficult time. My son is going to be 15 mos old on 11/2. He was diagnosed at 3 weeks of age and he is our first. It is very difficult to care for a child with a chronic illness. I remember right after Caleb was diagnosed we were told that our...

I am sorry you and your husband are having a difficult time. My son is going to be 15 mos old on 11/2. He was diagnosed at 3 weeks of age and he is our first. It is very difficult to care for a child with a chronic illness. I remember right after Caleb was diagnosed we were told that our...

I am sorry you and your husband are having a difficult time. My son is going to be 15 mos old on 11/2. He was diagnosed at 3 weeks of age and he is our first. It is very difficult to care for a child with a chronic illness. I remember right after Caleb was diagnosed we were told that our...

Hi Christi- We switched Caleb from formula to whole milk right at his 1 yr birthday. However, our nutritionist at the CF clinic put him on a higher kcal recipe for the whole milk. We put 1 tbsp of heavy whipping cream w/every 8 8oz of whole milk. I do use organic milk...just because I don't...

Hi Christi- We switched Caleb from formula to whole milk right at his 1 yr birthday. However, our nutritionist at the CF clinic put him on a higher kcal recipe for the whole milk. We put 1 tbsp of heavy whipping cream w/every 8 8oz of whole milk. I do use organic milk...just because I don't...

Hi Christi- We switched Caleb from formula to whole milk right at his 1 yr birthday. However, our nutritionist at the CF clinic put him on a higher kcal recipe for the whole milk. We put 1 tbsp of heavy whipping cream w/every 8 8oz of whole milk. I do use organic milk...just because I don't...

Steven (Ambry) Hi Steve-You emailed me a link for some info on one of my son's mutations. He has G551D and 2585delT. You stated in your previous posting that if a person has 2 milder mutations there disease may be a milder form (not necessarily always the case-but most of the time). How do I...

Thank you everyone for helping me with this. Thank you Steve for the link-I appreciate it. Now I just need to read through it several times to understand it <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks again! Melissa 1 son, Caleb, 14 mos w/CF

Thank you everyone for helping me with this. Thank you Steve for the link-I appreciate it. Now I just need to read through it several times to understand it <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks again! Melissa 1 son, Caleb, 14 mos w/CF

Thank you everyone for helping me with this. Thank you Steve for the link-I appreciate it. Now I just need to read through it several times to understand it <img src="i/expressions/face-icon-small-smile.gif" border="0"> Thanks again! Melissa 1 son, Caleb, 14 mos w/CF