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Insurance coverage through employer - how do you keep high useage from employer?
At least drugs are included in the out of pocket max now. So if we used the exchange and paid their price, once we paid $4000 (platinum coverage out of packet max) there would be no charges for anything. I am hoping that the vertex drugs do get approved and that they have copay assistance. Then... -
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Insurance coverage through employer - how do you keep high useage from employer?
Yes, my daughter is DDF508 also. Our exchange plan insurance specialty drugs like Kalydeco, Pulmozyme, Tobi... are going to a 10% copay! On my husbands plan it is a $150 copay. The only specialty drug she is on now is Pulmozyme. Right now we pay $15 per month for it, in January the copay would... -
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Insurance coverage through employer - how do you keep high useage from employer?
Yes she is the one with CF. We chose to purchase insurance through the exchange so we could keep our doctors. His work plan is and HMO "Select", meaning that there are even fewer doctors included in the plan than regular HMOs....it really sucks. But we added her on so we could get some of her... -
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Insurance coverage through employer - how do you keep high useage from employer?
Here is an article about it... http://www.bankrate.com/finance/insurance/obamacare-exchanges-vs-employer-health-insurance.aspx -
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Insurance coverage through employer - how do you keep high useage from employer?
We are in California and one of my daughters and I declined my husbands coverage. We pay full premium through the California Exchange. He double checked through his HR department and their insurance agent that this was Ok. Also, since your son will be paying full price, he doesn't have to buy it... -
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Insurance coverage through employer - how do you keep high useage from employer?
He should be able to buy his own insurance and decline his employer insurance. The major thing about that though is that it makes him ineligible for any subsidies. So he can decline employer coverage and buy his own as long as he pays the full premium. -
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When do your CF doctors glove up?
I will have to pay better attention next time. I know at least some of the members glove up in the room, but I don't know for certain that they all do. I'm pretty certain the Dr and RT do, but not sure about the dietician, social worker or nurse. -
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Baby bottle steam sterilizers for nebulizers...here's some efficacy data
We've been using the Wabi baby bottle sterilizer and we love it. It steams then dries the nebs. There is some controversy because it does use negative ions during the dry cycle and some say this can be harmful for people with lung conditions. But, it runs a short time and is not in enclosed area... -
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Can anyone help me to help my son?
Welcome WMom, hopefully we can be of some assistance. So is fainting and fatigue just part of this syndrome? Or is it an indication of low oxygen levels? Although my daughter has CF, she has good lung function / oxygen level so we don't have to deal with fainting and fatigue. If that did occur... -
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Cowardly Private Messages
Were they from cestiosub (?)? I got a couple weird ones. -
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College and Health Insurance
Thank you both for your input. Probably will need double coverage if she goes out of state and will check out healthcare.gov. -
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College and Health Insurance
My 17 year old CFer is narrowing down colleges she plans on applying to. Unfortunately, the only coverage option at my Husband's employer is HMO so any out of area providers would not be included on this insurance. For any of you CFer's that went to college out of state, what did you do for... -
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Health Insurance -- adding spouse or kids
It does sound about right. My husband has crappy insurance through work, but his coverage is paid 100%. Adding a spouse is about $450, and family coverage is about $900. -
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anybody taken Levofloxacin 500 mg tablets for bacterial lung infections?
My husband (bronchiectasis, no CF) recently switched doctors and this is what his new doctor prescribes, except at 750mg once a day. My husband has only done one round of this but had no problems. -
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Chronic staph problems
My daughter struggled with staph. Her doctor had her neb vancomycin 2 times a day, month on month off. She did this for a couple years and we just stopped this treatment earlier this year since she seems to have it under control now. This is off label use of the injectable vancomycin and I don't... -
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Anyone get a copy of their PFTs at clinic visits?
We don't get the actual report, but we get the PFT result in an Excel type form. All the the values are listed out along with all of the previous scores. We also get a graph that shows FEV1 and FEF 25-75 over the years so that you can visually see the drops and rises in those scores. We don't do... -
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Stupid question re cf spit on bday cake
We have friends whose daughter was a premie and has some on going health issues because of that. We recently went to a birthday party for her sister and they always do the big cake, take pictures of the B-day kid and cake ect... They then slice the cake and put candles in it for the b-day girl...