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  1. D

    Post Your Orkambi Updates

    Though important, i edited out the details... I don't understand this... I talked to my clinic and they said I had to come in to fill out paper work (won't send it to me) then do blood work, then they'll send in the prescription... Then one it comes in I have to come back in for 'education'...
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    Pharmacy and Orkambi

    I faced this same issue with Cayston when switching from CF services to other pharmacies. A pharmacy is a pharmacy, no? Why are certain pharmacies not allowed to distribute certain medications?
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    Ongoing War: Iced Coffee vs. Enzymes

    What Ethan says is pretty much correct. Obviously the amount of enzymes needed varies from person to person. If i ate one cookie, i'd take 1-2 enzymes.. depending on the cookie. Any time there's fat involved (and i also read on here that any time there's protein involved (which i never knew))...
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    Ongoing War: Iced Coffee vs. Enzymes

    Thanks both of you, I'm gonna try one or both of those.
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    Ongoing War: Iced Coffee vs. Enzymes

    Hello Everyone. I have a question that hopefully some of you who are more knowledgeable than me (which should be just about everyone! haha) or who've learned by trial and error (which hopefully is SOMEONE!) can help me answer. I've recently gotten addicted to iced coffee, with cream. (While on...
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    hemoptysis caused by zithromax?

    Hey lefty, I'm glad that I'm not crazy, and that someone else has had the same experience as me (although I wish we weren't having it at all) It's amazing how so many different people can have different reactions to the same medicines. I've been taking pulmozyme for years, and hypertonic...
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    hemoptysis caused by zithromax?

    Hi everyone, I'm looking for some help here: a few weeks ago I was coughing up blood for about 3-4 nights that week, while I was on the Tobi podhaler.. I stopped it and it went away... (Doc said that doing Tobi pod without doing albuterol inhaler first could cause broncospasms) so the bleeding...
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    Mucus in Upper Airways

    Hi Everyone... i'm hoping someone can give me some tips for what i'm dealing with I just got out of USC's hospital two weeks ago, and i'm feeling good. I have one issue that has resurfaced: i've had crackling in my upper chest, seems like almost in my throat. Before my hospitalization, i had it...
  9. D

    Mucus in Upper Airways

    Hi Everyone... i'm hoping someone can give me some tips for what i'm dealing with I just got out of USC's hospital two weeks ago, and i'm feeling good. I have one issue that has resurfaced: i've had crackling in my upper chest, seems like almost in my throat. Before my hospitalization, i had it...
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    770 approved!!!!!!!!!

    Anybody able to speculate on the possibility of GHPP (the state program here in the financially life-support-stricken state of california) approving this drug?
  11. D

    770 approved!!!!!!!!!

    Anybody able to speculate on the possibility of GHPP (the state program here in the financially life-support-stricken state of california) approving this drug?
  12. D

    Feeling blue lately

    i'm in about the same boat as azdesertrat, at least a couple times a week i get struck with depression-like feelings... sometimes it only lasts part of a day, sometimes it goes over a couple days... and i just have to barrel through. But, i also believe a dog helps... i live by myself, and had a...
  13. D

    Feeling blue lately

    i'm in about the same boat as azdesertrat, at least a couple times a week i get struck with depression-like feelings... sometimes it only lasts part of a day, sometimes it goes over a couple days... and i just have to barrel through. But, i also believe a dog helps... i live by myself, and had a...
  14. D

    Feeling blue lately

    i'm in about the same boat as azdesertrat, at least a couple times a week i get struck with depression-like feelings... sometimes it only lasts part of a day, sometimes it goes over a couple days... and i just have to barrel through. But, i also believe a dog helps... i live by myself, and had a...
  15. D

    Adult CF Center in Los Angeles?

    I use USC also, even tho i dont have another adult center to compare it to, their care seems good, i was actually in their hospital , and that care was also phenomenal... BUT, i will say this... If i go into USC and tell them something's wrong, like, i've got some chest burning, or some extra...
  16. D

    Adult CF Center in Los Angeles?

    I use USC also, even tho i dont have another adult center to compare it to, their care seems good, i was actually in their hospital , and that care was also phenomenal... BUT, i will say this... If i go into USC and tell them something's wrong, like, i've got some chest burning, or some extra...
  17. D

    Adult CF Center in Los Angeles?

    I use USC also, even tho i dont have another adult center to compare it to, their care seems good, i was actually in their hospital , and that care was also phenomenal... BUT, i will say this... If i go into USC and tell them something's wrong, like, i've got some chest burning, or some extra...
  18. D

    Feeling blue lately

    I don't know anything about you, (age, gender... Etc.) And on my phone on sprint's (crappy) 3g network searching posts would be like pulling teeth, but I can tell you what I do. I love rock music, for some reason guns n roses and ac/dc can get me pumped up (ya know, to a certain extent) also, tv...
  19. D

    Feeling blue lately

    I don't know anything about you, (age, gender... Etc.) And on my phone on sprint's (crappy) 3g network searching posts would be like pulling teeth, but I can tell you what I do. I love rock music, for some reason guns n roses and ac/dc can get me pumped up (ya know, to a certain extent) also, tv...
  20. D

    Feeling blue lately

    I don't know anything about you, (age, gender... Etc.) And on my phone on sprint's (crappy) 3g network searching posts would be like pulling teeth, but I can tell you what I do. I love rock music, for some reason guns n roses and ac/dc can get me pumped up (ya know, to a certain extent) also, tv...
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