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I've wondered that, too, Pat. I'll be 53 next month & never had one. My fev1 is around 30% right now.

I think you are right, Autumn. I'm on week 5 of home IVs after a short ICU stay to desensitize. I think I've been just as sick as many who are hospitalized. I was told by other CFers on FB that nebulized meds no longer will count, as well as ER trips, which is just nuts. this is very scary...

They will no longer consider physician interventions that are outpatient or ER visits. They will no longer count for the 6 treatments that qualified in a year previously. I'm just hoping that I will still qualify because there is no way that I can work.

I just rejoined back here at cf.com and if I'm not supposed to post this, Ennio, just remove it and send me a message. It just became public knowledge 48 hrs ago that Obamacare has a revision underway to change the qualification for Medical Disability for Respiratory Illness. I can't remember...

You put it very well. I agree with Beccamom, too. I feel like a burden to my family. We never get to do anything fun, go out, on vacation, etc. and we are always in debt. Rec'd some money recently as a gift and used it to pay down some of our bills and it felt so good to eliminate a couple...