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  1. J

    Pod Cast with Jerry Cahill

    Hey Guys,<br><br>Sorry I have not posted in a while but I still read on here every day or so. I keep tabs on all of you.<br><br>I was asked by Jerry Cahill to do a Podcast. He is going to be in my town next week. Since some of you have been with me from the beginning of being diagnosed with CF...
  2. J

    Pod Cast with Jerry Cahill

    Hey Guys,<br><br>Sorry I have not posted in a while but I still read on here every day or so. I keep tabs on all of you.<br><br>I was asked by Jerry Cahill to do a Podcast. He is going to be in my town next week. Since some of you have been with me from the beginning of being diagnosed with CF...
  3. J

    Pod Cast with Jerry Cahill

    Hey Guys,<br><br>Sorry I have not posted in a while but I still read on here every day or so. I keep tabs on all of you.<br><br>I was asked by Jerry Cahill to do a Podcast. He is going to be in my town next week. Since some of you have been with me from the beginning of being diagnosed with CF...
  4. J

    If you ever test positive for CF is that a guarantee?

    I am the epitomy of a false positive, I lived as a CFer for 10 years, and recently was undiagnosed last November. I have two CF genes, one is not described, Df508 and Q1330E, I have had many positive sweat tests, but also have Addison's disease which can cause false positives. I had a nasal PD...
  5. J

    If you ever test positive for CF is that a guarantee?

    I am the epitomy of a false positive, I lived as a CFer for 10 years, and recently was undiagnosed last November. I have two CF genes, one is not described, Df508 and Q1330E, I have had many positive sweat tests, but also have Addison's disease which can cause false positives. I had a nasal PD...
  6. J

    If you ever test positive for CF is that a guarantee?

    I am the epitomy of a false positive, I lived as a CFer for 10 years, and recently was undiagnosed last November. I have two CF genes, one is not described, Df508 and Q1330E, I have had many positive sweat tests, but also have Addison's disease which can cause false positives. I had a nasal PD...
  7. J

    Ambry results in....

    Great News.... Good luck on your search to discover his illness
  8. J

    Ambry results in....

    Great News.... Good luck on your search to discover his illness
  9. J

    Ambry results in....

    Great News.... Good luck on your search to discover his illness
  10. J

    Bree

    I knew her as well, She was very kind to me. I am greatly sorry for all involved, It seems like this week has been brutal with losing people with CF and or lung disease.
  11. J

    Bree

    I knew her as well, She was very kind to me. I am greatly sorry for all involved, It seems like this week has been brutal with losing people with CF and or lung disease.
  12. J

    Bree

    I knew her as well, She was very kind to me. I am greatly sorry for all involved, It seems like this week has been brutal with losing people with CF and or lung disease.
  13. J

    Social Security Application

    You have to be deemed disabled for five months before you are eligible to collect your money, That is federally governed. The only thing you can do is see if you can be deemed disabled sooner. If I remember correctly you have to not have been working or if you were working, I believe you have...
  14. J

    Social Security Application

    You have to be deemed disabled for five months before you are eligible to collect your money, That is federally governed. The only thing you can do is see if you can be deemed disabled sooner. If I remember correctly you have to not have been working or if you were working, I believe you have...
  15. J

    Social Security Application

    You have to be deemed disabled for five months before you are eligible to collect your money, That is federally governed. The only thing you can do is see if you can be deemed disabled sooner. If I remember correctly you have to not have been working or if you were working, I believe you have...
  16. J

    Nasal Potential Difference as Part of CF Dx process

    Hi Karen, I do not go to UNC, I just went there to have the Nasal PD. I go to MUSC and I am seen by the CF doctor just not in a CF clinic. The Nasal PD is not usually done on really small children to my understanding. I would wait and see. Almost always Ambry can pick up the genes so I would...
  17. J

    Nasal Potential Difference as Part of CF Dx process

    Hi Karen, I do not go to UNC, I just went there to have the Nasal PD. I go to MUSC and I am seen by the CF doctor just not in a CF clinic. The Nasal PD is not usually done on really small children to my understanding. I would wait and see. Almost always Ambry can pick up the genes so I would...
  18. J

    Nasal Potential Difference as Part of CF Dx process

    Hi Karen, I do not go to UNC, I just went there to have the Nasal PD. I go to MUSC and I am seen by the CF doctor just not in a CF clinic. The Nasal PD is not usually done on really small children to my understanding. I would wait and see. Almost always Ambry can pick up the genes so I would...
  19. J

    Nasal Potential Difference as Part of CF Dx process

    Harriett, I just emailed Dr Donaldson at UNC and asked him if he would be interested in drawing blood on my parents like he originally said they might be. I don't know what is wrong with me or why I am so afraid to be bold when it comes to me but I am.....Both my parents are so upset with me...
  20. J

    Nasal Potential Difference as Part of CF Dx process

    Harriett, I just emailed Dr Donaldson at UNC and asked him if he would be interested in drawing blood on my parents like he originally said they might be. I don't know what is wrong with me or why I am so afraid to be bold when it comes to me but I am.....Both my parents are so upset with me...
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