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  1. H

    DF508ers who participated in VX-770 trials

    Epigenetics is not well understood yet by those studying it. I don't think any of us are competent to speculate above the fact that, as you said, some people with nearly the same genes and similar environmental factors have different outcomes. I think the concern that some of us have is...
  2. H

    DF508ers who participated in VX-770 trials

    Epigenetics is not well understood yet by those studying it. I don't think any of us are competent to speculate above the fact that, as you said, some people with nearly the same genes and similar environmental factors have different outcomes. I think the concern that some of us have is...
  3. H

    Generic Hyper-Sal

    Similar to preferring the red M&Ms over the green ones.
  4. H

    DF508ers who participated in VX-770 trials

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kyrock85</b></i> I participated in the study (i'm homozygous df508). In the begining I wasn't suppose to be able to see what my PFTs were (they were...
  5. H

    DF508ers who participated in VX-770 trials

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Incomudrox</b></i> <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>kyrock85</b></i> I participated in the study (i'm homozygous df508). In the begining I wasn't suppose to be able to see what my PFTs were (they were...
  6. H

    Generic Hyper-Sal

    kinda hard to screw up salt water... ETA: You mighjt be able to get it much cheaper if you go to a compounding pharmacy and have them mix it up for you.
  7. H

    appeal

    I had a similar situation a few years back, except I chose to go to the hospital that my insurance covered. I know what needs to be done well enough to guide a regular pulmonologist and my CF team was willing to consult with him. I made it through just fine and didn't have to worry about the...
  8. H

    thoughts on school

    I went to a public school, but for non-CF reasons was transferred to a private school in the middle of first grade. I remained in private school until 9th grade and switched back to get some kind of normalcy before going to college. I suppose the biggest obstacle (at least in my case) were the...
  9. H

    thoughts on school

    I went to a public school, but for non-CF reasons was transferred to a private school in the middle of first grade. I remained in private school until 9th grade and switched back to get some kind of normalcy before going to college. I suppose the biggest obstacle (at least in my case) were the...
  10. H

    ABPA and your treatment.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> And for an anti-viral those side-effects are minor.</end quote> Anti-viral? Voriconazole is an antifungal agent.
  11. H

    ABPA and your treatment.

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>dbsholes</b></i> And for an anti-viral those side-effects are minor.</end quote> Anti-viral? Voriconazole is an antifungal agent.
  12. H

    What are our real PFT numbers

    There are many algorithms to determine normal value sets for PFTs (Polgar, Morris, Knudson, NHANES III, etc.) If your clinics use different sets, you will have varying results (the set used should be listed on the PFT report). This is why it's important to understand and be able to interpret...
  13. H

    What are our real PFT numbers

    There are many algorithms to determine normal value sets for PFTs (Polgar, Morris, Knudson, NHANES III, etc.) If your clinics use different sets, you will have varying results (the set used should be listed on the PFT report). This is why it's important to understand and be able to interpret...
  14. H

    azithromycin

    I too have stopped taking prophylactic Azithromycin for pretty much exactly the things that Incomudrox has mentioned.
  15. H

    azithromycin

    I too have stopped taking prophylactic Azithromycin for pretty much exactly the things that Incomudrox has mentioned.
  16. H

    Need asperilligos information please im beginning to wander if i have this

    It helps a little in that it's important to remember that not everyone fits a textbook.
  17. H

    Need asperilligos information please im beginning to wander if i have this

    It helps a little in that it's important to remember that not everyone fits a textbook.
  18. H

    Need asperilligos information please im beginning to wander if i have this

    Did your doc explain how you were having a massive allergic reaction, but failed to produce immunologic markers? I'm interested in the pathology of your case. Was your IgE a serum IgE? Was a RAST and ASP specific IgE done? My interest is because in the past I was having what seemed to be a...
  19. H

    Need asperilligos information please im beginning to wander if i have this

    Did your doc explain how you were having a massive allergic reaction, but failed to produce immunologic markers? I'm interested in the pathology of your case. Was your IgE a serum IgE? Was a RAST and ASP specific IgE done? My interest is because in the past I was having what seemed to be a...
  20. H

    Symptoms in 2 month old?

    Your son sounds exactly like what my parents described to me as my first weeks. I was Dx by sweat test at 6 months. Prior to that I was labeled as failure to thrive and had the same presentation as your son.
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