Search results

Thank you all!!!!

Hello Everyone-- i wanted to share with you all that I had a PET scan yesterday, a PFT today where my FEV1 went up by 25 points. I also met with the thoracic surgeon to tell me what the outcome of the latest scan was, and he reported that the nodule is resolving itself, and is not even...

Ok. I will call ahead tomorrow to try to get the appointment the same day or the next day and we will spend the night. Thank you. I will check in again as soon as I get more specifics. Again thank you so much.

I don't see my last post, so I am going to try again. Thank you both. I did make an appointment with Dana Farber for a second opinion. And yes it is terrifying to think I might have another cancer after having 4 diagnoses of cancer in the last 7 years, along with the official CF diagnosis. I am...

Thank you for your advice. I contacted Dana Farber today, and they call within 24 hours for a second opinion, so I am scheduling that ASAP. You are right, it is so scary, after 4 cancers, to have them find a new nodule that wasn't there two years ago, almost an inch long. But I am trying to...

Thank you for your input... That makes sense. The only arguable issue I have is a relatively large solitary nodule 2.24 cm And s history of cancer, but I too have had several misdiagnosis' so your point is well taken especially considering the seriousness of the surgery itself. Thanks

Hello again-- I understand you are just offering your thoughts and opinions-- I appreciate that. My question is what makes you feel that way based on what I shared? I would be willing to go anywhere for a second opinion, and am just interested in what raises red flags for you. I appreciate...

Hi I appreciate your response but can you explain to me what the basis is for you recommending that I get a second opinion? Are you basing it on my CF diagnosis, or nodule diagnosis?

Yes, I am at Yale CF clinic. I always sort of believed I had CF but I was diagnosed with ABPA as a young girl. I had lots of lung issues and bronchestasis and was tested at National Jewish for a Delta 508 in 1998. I was grateful to be there because they too believed that I did not have ABOA...

Hello Everyone- i am 55 w atypical CF delta 508/5T and in the last 7 years have had 4 cancers...2 in situ, 1 early, and lastly lymphoma, which was in the blood when diagnosed. Two weeks ago I coughed up blood, a bit different than my normal CF hacking, which brought me to the ER where they...