Search results

It's totally your choice and you are not wrong either way. I was in your place last year trying to decide whether or not to enroll my son in pre-school at 2. I decided to wait until this year so he'll start this September at 3. When he was just an infant, I joined at local mom's group and...

Hi, I was wondering if anyone takes Bethanechol for reflux. My son takes both Bethanechol and another medicine. They are both compounds since he is an infant. When it gets toward the end of the bottle, the medicine is mostly gone and he is likely just getting saline. We've gotten in the...

I thought that it was high as well, but my experience is limited since he is my first with cf. He is now 10 months, but was about 8 when it was prescribed.

Oh, I missed the question about HTS. Nicholas was put on HTS when he was in the hospital. He was in for bowel related issues, not lung, but the doctor on rounds thought it was good to start him. He started on 7% and I did not like it at all. It made him cough a lot and made his nose...

Hi Jessica, my son is now 10 months old. He was diagnosed at 5 days and we started treatment immediately. Initially he was just put on enzymes, albuterol (sp?) (with chest pt 2 times per day), salt and reflux meds. We just started pulmozyme at 8 months. His doctor said that there are studies...

Hi Shannon, If your oldest son is biologically yours and he has two good genes, then it shouldn't be possible for you or your husband to have cf. If you did have cf, you would have two mutated genes...and therefore could only pass a mutated gene to your children... In order for your oldest...

Hi Shannon, If your oldest son is biologically yours and he has two good genes, then it shouldn't be possible for you or your husband to have cf. If you did have cf, you would have two mutated genes...and therefore could only pass a mutated gene to your children... In order for your oldest...

I'm glad to hear you found a method that helps you. I was lucky that my son always took his enzymes very easily. He was 5 days old when he started, so I'm sure that helped. I sprinkle the enzymes on applesauce and then put it to his lips and let him suck the mixture in. I never forced the...

I'm glad to hear you found a method that helps you. I was lucky that my son always took his enzymes very easily. He was 5 days old when he started, so I'm sure that helped. I sprinkle the enzymes on applesauce and then put it to his lips and let him suck the mixture in. I never forced the...

All of the advice offered so far is great, so I will try not to be too redundant. The one thing that I didn't see mentioned is Triple Paste. I use this on my son every time I change his diaper. They started us in the hospital using it since the enzymes cause a bad diaper rash. I ran out at...

All of the advice offered so far is great, so I will try not to be too redundant. The one thing that I didn't see mentioned is Triple Paste. I use this on my son every time I change his diaper. They started us in the hospital using it since the enzymes cause a bad diaper rash. I ran out at...

My son had echogenic bowel on his ultrasounds, which prompted them to test my husband and I. We did not get an amnio and therefore did not know for sure that he had cf before he was born. On the first and second day, he was not eating and was extremely sleepy. He also started to vomit a...

My son had echogenic bowel on his ultrasounds, which prompted them to test my husband and I. We did not get an amnio and therefore did not know for sure that he had cf before he was born. On the first and second day, he was not eating and was extremely sleepy. He also started to vomit a...

Maybe I misspoke. I didn't exactly mean released. I just meant that it is now available to certain groups.

Maybe I misspoke. I didn't exactly mean released. I just meant that it is now available to certain groups.

I have a question about the new drug Kalydeco. There are plans to test it on other "gating" mutations. I have been trying to find out which mutations are considered "gating," but have not been successful so far. Does anyone know which mutations, other than G551D are considered to be gating...

I have a question about the new drug Kalydeco. There are plans to test it on other "gating" mutations. I have been trying to find out which mutations are considered "gating," but have not been successful so far. Does anyone know which mutations, other than G551D are considered to be gating...

Hi Chris. I am actually in a very similar situation, only we are thinking about baby #2. My husband and I both found that we were carriers while I was pregnant with our son. We were both tested after my doctor saw signs that my baby had a blocked bowel on the ultrasound. My son is now 5...