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Well it just so happens that Abby just had the Rhino virus and is still trying to get over it. Abby mainly had sinus problems, and oh how I wish I could tell you to do some sinus rinse' because that is what has helped her so much, but you absolutely can't do that on an infant. Poor baby...

Hi Sara!!! Abby is 7 now, and we take the same approach as you. We answer what questions are asked. She doesn't like to talk about it with anyone else, she seems to be embarrassed by it, which breaks my heart. Also she has been through so much that I be sure to be completely honest with her...

So she actually had her clinic a little while ago but I wanted to wait until I had her throat cultures before I posted. She has been under the weather since mid September with cold type symptoms, and she is finally getting over it I am happy to say!! Her PFT's were not so great because she was...

Thanks for all the info Gen!! And I hope you have a great trip and keep your lung function up!! That is exciting not having to worry about a fridge. :)

Gen does The Bronch take the place of Hypersal pretty much? If Hypersal improved lung function by 5% and The Bronch increases by 5%....does taking away the Hypersal drop it back down 5%? Sorry just a little confused about that. Also are there any other side effects besides the cough due to...

We have a whole house IQAir system and I love it!!! And I believe that it has helped my little one tremendously!

Hi!! My little one is 7 and she does not have clubbed fingers either, and honestly I don't really know all that much about it, but I do know that they check her every time we go in so I am assuming it is something that can develop. Here is a helpful link that I just found on it...

I too really enjoy and love this sight and all my dear friends!! This site is a God send as far as I'm concerned along with all of the wonderful people it has brought together. :)

Wow mysticrose that would make me cry too!! I know nothing about acid reflux, thank goodness Abby has never suffered from that. But I will say she did get a cough just like you are describing when she would culture the H-flu. Since her baseline is no cough I would get her antibiotics and it...

OH congratulations!!! She is so beautiful!!! I am so happy that everything is looking so good!!!! God is good!!

Wow reading all of your posts just breaks my heart!! I can not imagine what yall must be going through both mentally and physically! I have no words of wisdom, I just had to let you know that I will keep yall in my prayers and I pray that yall can find the solution and what works best for your...

I sent you a message.

Wanted to chime in...our pediatricians were always very sheepish with the dosing of antibiotics and our CF docs always said oh no no no...have to take a much stronger dose than that...and they were always right in our case. When Abby doesn't take the right dose it may fend it off but not get...

So glad there is no liver damage!! God is good!! :)

I just ordered my copy!! Now I just have to find the time to read it :/ :)

I know I'm a little late but wanted to say Welcome!! My first year was a whirlwind of information and overwhelming at times, but it passes and you become a CF pro with the help of good friends on this website and personal experience :) My advice is make some friends on here, and visit often...

I wanted to add my congratulations!!! I think Aboveallislove covered everything beautifully!! I think knowing what I know now, I would want to know all I can about his previous medical history (any surgeries, hospitalizations, cultures) Basically what your new CFer has problems with as every...

I agree I would be concerned. The doctors told us for years not to worry about it after she got it, but yet MRSA always seemed to be the culprit that made her sick and it just never seemed to go away no matter what they through at it. Why is life so complicated? Ugghhh!! I'm very sorry to...

If the sodium bicarbonate doesn't work what about trying a different brand of enzyme? Abby had tummy issues, not as bad as yours, until we found the right dose for her. Maybe the enzymes he's taking isn't the right one for him. I know I have heard people before say that switching the brand of...

Yes Welcome!! Is there anything in particular that you may have questions about? It is so much information to take in and it is very hard to accept. Hang in there, before you know it a year will have gone by and you will become a CF pro!! The first year is definitely full of learning and...