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There is currently a CF clinical trial with Aero Vanc, dry powder Vancomycin, enrolling CF patients. The delivery of Aero Vanc is comparable to the deliver of Tobi Podhaler for those of you familiar with Tobi Podhaler. Info below: To find out if a CF center near you is enrolling patients (click...

I have CF, CFRD, Gastroparesis, and for the last year severe reflux. I had a pH-impedence test which came back normal, other than regurgitation being associated with cough. My gastroparesis is severe and I take two medications to treat delayed gastric emptying: Motilium alternated every other...

My spirometry is normal yet I am on IV antibiotics every 4-6 weeks. My FEV1 is in the 90's yet I am frequently coughing up blood and sick. I used to believe PFTs were indicative of one's overall pulmonary status with CF, but now I realize this is not always true. My CF doctor told me that I have...

<P>I would like to hear from anyone who has used inhaled and or intravenous (IV) form of Amphotericin. My CF doctor believes my hemoptysis episodes are caused by invasive aspergillosis, and I have not been able to take Azole antifungals due to side effects. </P> <P> </P> <P>I have not had a...