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My little son Liam was on a Cephalosporin (an antibiotic) for six weeks in April/May because of a very prolonged infection series. In June he cultured Pseudomonas for the first time. I was wondering whether any of you have noticed a connection between the use of an antibiotic (for any kind of...

Hi all, I am crying as I write this. Our clinic just informed us that Liam has cultured Pseudomonas. We will be admitted on Monday to start two weeks of iv antibiotics, and they will start him on inhaled Tobi. I am devastated. He will be 1 on Tuesday. Isn't this far too early for him to culture...

Hello everyone, We have recently been told to increase Creon, because our son wasn't (and still isn't) gaining weight properly. It has been four weeks with the higher dose, without any significant changes of his weight. I was wondering whether it might be necessary to add an antacid. Or change...

Our little Liam is eight weeks old and we are planning our first holiday as a family. My parents own a campervan, which we used to use regularly and would love to continue using. I would be very interested in your opinion or experience with camping with CF-patients. Our main concern is of course...

Hello everyone out there, I'm hoping for some answers of other patents who found out about the child's CF during pregnancy, or of anyone else who might be able to help.. I have been wondering whether there might be a connection between the potential CF of my unborn child (38th week of...

Hello everyone, we found out a couple of days ago that our unborn son (31 weeks) will very probably have CF. He has had an echogenic bowel since week 24, which is why my husband and I were tested for any CFTR- mutations. I have R1162X, my husband dF508. We were shocked when we found out, and can...