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I was just wondering if anyone here is from central/upstate NY (Syracuse area) and goes to the University Hospital CF center for treatment? I am asking because I haven't heard much about Addison's doctor (Ran Anbar) and I was hoping someone else went to him. Does anyone know of a website where I...

I just wanted to share some good news. Addison had her third CF appt on Monday and we found out that she is pancreatic sufficient. The dr said that it is highly unlikely that she will develop an insufficiency because her enzyme levels were so high. Finally some good news! Still waiting to find...

This is kind of a random question, but for how many months did you boil your babies bottles, pacifiers, etc..? I'm starting to get sick of boiling everything all the time, but I hate to stop just in case it can help keep her from getting sick. Also, how much pedialyte do you give your babies...

My baby was just diagnosed with CF yesterday. She is only 7 weeks old and not presenting any symptoms. I am still in shock from hearing the news and my family is devistated. I have no idea what to expect because my daughters second mutation has yet to be found (the dr. told us this would...