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My daughter is almost 14 and last year we got a diagnosis of cf after a long 7 year search for an answer to her health issues, mostly weight and malabsorption issues. She had two positive sweat tests, 87 and 89, but the Ambry full panel only revealed one mutation. Curious. After a year of...

My head is spinning with more questions than I can sort out. My 13 year old daughter had a clinic visit with the pulmonologist on Tuesday. She was diagnosed with cf a little over a year ago with sweat tests of 87 and 89. The cf clinic took her in and treated her for several months while...

I just couldn't let the Kentucky Derby go by unmentioned especially since I live so close to it. For anyone who is not familiar with this, it's a horse race, the biggest horse race. Growing up here I never realized how big of deal it was until I was grown. This year the Queen of England is...

I have a problem. I have developed a horrible cold with an even nastier cough. I'm talking uncontrollable coughing. How do I keep my CF kid from catching this thing? I went to the Dr. yesterday hoping to get some meds. to kick it as fast as possible, but because my lungs were clear and there...

Well, I haven't been on this forum for a couple of weeks now and boy have I missed it!!! I have been swamped with final exams, but I took the last one today, thank goodness. I am proud to say that I have made the dean's list this semester with a perfect 4.0. The only down side to this is that...

Okay, as I sit here typing it is SNOWING outside. Just 4 days ago it was 85 outside and everyone was planting flowers and cutting grass. Spring had sprung and I even pulled out shorts. Now it is snowing, what the heck is going on here in Kentucky???? If it keeps this up the horses will be...

Okay, I have gone back to college at age 35. I knew it would be hard, but I also knew that it was something I wanted more than anything. I am carrying some pretty jtough classes this semester: Anatomy and Physiology, Physics, Medical Terminology, and US History. I just completed my third test...

I have a 13 year old daughter with cf who is not gaining weight at all. She currently weighs 64 lbs. and is at a stand still on gaining. The docs. have added zinc and changed her enzyme. We are going back to clinic in about 3 weeks to recheck weight. What if she still hasn't gained? I have...

Samantha had her annual clinc visit last week and about a million tests and labs to go with it. I have been on pens and needles waiting to here the results and all are in and almost all are good. She is low in zinc and osteopenia, we can fix those. Her pfts were great (better than 3 months...

Samantha (age 13) had her annual labs, scans, etc. last tuesday. So far the things we have gotten back were all good or normal except there was protein and bacteria in her urine. Anyone know what this means?? The docs. haven't gone over the results with me yet, I just called and a girl in the...

I was just wondering if anyone out there is on disability? My husband and I are going to try to get if for our daughter (has cf) but we have heard stories about how everyone gets denied the first time and you can only get it with a lawyer's help. I was just trying to get some input. Thanks.

I'm a little down in the dumps today. I went to the funeral home last night because my cousing passed away form multiple cancers. It was no shock as he had been ill for some time now, but death is not something you can be ready for. The thing is that in my life I have been very lucky to not...

I have a question that I know has no exact answer, but I am hoping to get some input anyway. My daughter is 13 and was diagnosed with cf last year. The only symptoms she has are all digestive related and occasionally a sinus related problem. She hasn't been "sick" since her diagnosis with the...

Hi everyone. I am hoping to gain some companionship and some information about my daughter, Samantha, age 13, diagnosed last year with CF. I am new to the site and posted a reply to someone and received a suggestion to start a new topic so here goes. My daughter had a positive sweat test, but...