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Marahsny had her tube placed on the 14th and we are still here. She started feeds but then began to throw up so we are back to square one. She had a fever and is on antibiotics now. Thank you and just wanted to touch base Christina

Marahsyn's liver enzymes are still elevated and so we are adding URSO to the list of meds. Anyone had experience with it?? Thank you and prayers for all Christina

How in the world do you keep it clean?? I am sooo terrified right now cuz Marahsyn has lost 1 1/2 lbs in a little over a month and a half but she is 16 months old and always on the go!!! Plus she hates anything that is slimy textured and since I noticed most fatty foods are such, help

My hubby and I are considering getting a hairless pet to add to our current crazy household. Anyone heard of pros/cons from their docs about family pets? We were considering female indoor hairless Sphynx cat?? <img src="i/expressions/face-icon-small-confused.gif" border="0">

I am thinking abut going back to school to finish my nursing degree and would like some professional opinions

<a target=_blank class=ftalternatingbarlinklarge href="http://www.tri-cityherald.com/tch/local/story/9206446p-9122709c.html ">http://www.tri-cityherald.com/...206446p-9122709c.html </a> This is great news for the CFrs around the world

Well this year we were awarded 2000 to the CF Foundation in New Orleans from Burger King. Hopefully next year we can earn more!! Go Team Here is the link if you wanna check it out: <a target=_blank class=ftalternatingbarlinklarge...

Has anyone had experience with it? How do you use it?? What can I put it in to mask the oily texture

Does anyone have problems with their teeth as a result of the enzymes?? <img src="i/expressions/face-icon-small-confused.gif" border="0"> Marahsyn takes the Pancrease MT4 and her two bottom teeth in the front are deteriorating quickly.<img src="i/expressions/face-icon-small-sad.gif" border="0">...

Main Category: Cystic Fibrosis News Article Date: 26 Apr 2007 - 0:00 PDT | email to a friend | printer friendly | view or write opinions | Article Also Appears In Infectious Diseases / Bacteria / VirusesBiology / Biochemistry rate this article Researchers from the Schulich School of...

Main Category: Cystic Fibrosis News Article Date: 26 Apr 2007 - 0:00 PDT | email to a friend | printer friendly | view or write opinions | Article Also Appears In Infectious Diseases / Bacteria / VirusesBiology / Biochemistry rate this article Researchers from the Schulich School of...

I need help. Would like to put a pic or two of my family and I cannot for the life of me to get it to work.............ARRRRRRRRRRRRRRRRRRRRRRRRGH

Does anyone have suggestions for places to vacation that accommodate the children with special healthcare needs?? Our family is in desperate need of a vacation but we are scared to go with Marahsyn's condition without having knowledge of what we are up against first. Thanks

I was curious at what age is "normal" to start coughing?? I know this sounds like a silly question but our almost 10 month old never coughed until last week when our weather got really warm. Should I be worried?? Are coughs a good thing?? Thank you Christina (mom 2 4 girls) Alleysen, Karsyn...

My Cf baby seems to have all the genetic mutations linked to the worst type of CF. Does anyone understand what each of the mutations mean? Here is the list: R553X G551D delI507 delF508 1717-1G>A G542X R560T 3120+1G>A And the list goes on and on.... I am so confused:<img...

Anyone heard when it should be approved for children under 6? What exactly does it do and what are the side effects if any?? Thank you Christina mom of 4 girls Alleysen (11) Asthma and ADD Karsyn (4) PDD Seazyn (2) Asthma Marahsyn (9mths) Delta 508 CF Baby

sorry posted twice. the other has the question