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I know there have been posts about this before but... I currently have primary insurance through my employer. I am only working part-time and still receive partial SSDI, so still have Medicare. I also have the State-funded GHPP insurance (in CA). I have been contemplating dropping my...

I have a lot of trouble trying to explain to people why it is that I can't work full-time, why I need more rest than most people, etc. I can easily say I have all these treatments to do, blahblahblah, because that is something tangible that makes sense to people. But whenever I try to explain...

So the past couple of times I've used the Neilmed sinus rinse, I've noticed that as I'm squeezing the liquid in my nose, it starts to not only drip out of the other nostril (like it's supposed to), but it comes out of my eye too!! At first I just thought I'd accidentally squirted it INTO my...

Just wanted to add, since the million 'goodbye' threads are locked, that we have other people who actively participate on this site AND have Asperger's syndrome. Being Aspie is not really an explanation for inundating the boards with conflicting information, and quite frankly, it's slightly...

When doing inhaled Tobi or Colistin, is it safe for non-CFers to be in the room, presumably inhaling your residual mist? Wouldn't they be inhaling the antibiotic too, and could this potentially result in a healthy person building up resistance to antibiotics?

If any of you use your eFlow for more than one medication, do you have different neb cups for each one? I ask because I know some of you use the eFlow for albuterol, Tobi, Colistin, maybe even Pulmozyme - and the Pulmozyme i know for sure is supposed to have it's own separate neb cup. Yet it...

Anybody have any suggestions for alleviating the insane itch and irritation caused by traditional port dressing "tape"? Even after it's removed, my skin is irritated for weeks <img src="i/expressions/face-icon-small-sad.gif" border="0">

I'm really interested in alternative therapies for managing my CF. I am increasingly becoming more concerned with the use of Tobi and other drugs I feel are more like poisons than cures. I know some of you out there use supplements and other herbal remedies and I'd really like to know what you...

I currently use an albuterol/atrovent combination, but I've seen a lot of people mention xopenex and am now thinking I might like to try it. If you nebulize it, does xopenex need to be diluted? Can it be mixed with atrovent? I've found that when I dilute my albuterol with saline, it doesn't...

So my uncle's had this terrible snoring problem his whole life. He finally did a sleep study and found that he was seriously desatting during his sleep cycle (dropped into the 80s). The past few years, he's been having a lot of memory troubles too (he's in his 70s though, so that might just be...

Just wondering how everyone gets rid of their expelled mucous. I've heard of spitting into bowls, cups, etc...but then what do you do? Just rinse it down the drain? I spit into tissue and throw away but have recently discovered a few problems with this (not to mention being so wasteful of...

I posted about this on another thread but I hope someone might have a suggestion for me. My doc denied the eFlow saying it wasn't proven safe for use with tobra. Debbie warned me before she died that he would deny me (we have the same doc), so I even went armed with all of Amy's statistics. Here...

Does anyone know - can you boil the parts? (It doesn't say so in the little instruction pamphlet - only to wash with warm, soapy water and let air dry.) Should I be using alcohol or peroxide? hmm, I think I just answered my own question, LOL. <img src="i/expressions/face-icon-small-tongue.gif"...

So after attending the Stanford CF Education day in person, I became very interested in NAC. I tried to get in on the next round in the study they're doing, but my FEV1 isn't high enough (isn't that always the case?) so I decided to go for it on my own. The doctor running the study at Stanford...

I mix my own and I used to do 150 mg, mixed with 2.5 cc's sterile water, then inhale the whole thing like that, twice a day. Now I'm told to mix 5 cc's of sterile water into the 150 mg colistin, but only inhale half in the am and half in the pm so it ends up being 75mg twice a day. What does...

Anyone know why some threads get "locked" so that no more posts are allowed? Why do some posts repeat themselves 2, 3, or 4 times? How the heck do I get pictures posted? How do I see the pics of others? I can see some photos right there in the signature, but others just have what looks like a...

My father is a smoker. I didn't grow up with him and I only visit him occasionally, but just this past weekend while I was visiting, he lit up right in front of me! Granted we were outside barbequing, but still. My step-brother's girlfriend, who is so awesome in every other way, is also a...

I've seen some posts on here where people stated that their FEV1's were in the 30s while sick, but that they were able to bounce them back up to 50s and 60s!! Obviously then, those lower numbers didn't indicate any permanent damage, is that correct? Does anyone know if "permanent" damage can...

Hey everyone - I used to go camping a lot when I was younger (and had WAY better lung function). Back then, I would usually just skip my nebs altogether and bring along a little albuterol inhaler. I didn't even do airway clearance!! In retrospect, that was really REALLY dumb, but I was a dumb...

I didn't want to hijack danyell's post, but reading it brought up a big issue for me that I'm hoping maybe some of you might be able to help me with. I'm currently working outside the home and in March I finally had to reduce my hours to half-time. This has worked so much better for my health...