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I have read that some people are able to watch TV while doing their vest/nebulizer treatments.  I wish my DD could do that.  Her machines are so loud that we would have to turn the TV volume up so high that the neighbors could hear it (a slight exaggeration).  Even so, I wonder if there is...

Lauren's height and weight have stalled for the last two years. She had been over the 50th percentile in both when she was 7. Now she is almost 10 and has dropped to below the 25th percentile in both. A friend mentioned that her son is very small because he uses so many steriods, like...

My dd, age 9, has been at the same weight for the last two years. We've tried many things to get her weight up. Everything works for a little while, then the weight goes back down. She's been stuck in this 4 pound window of weight way too long for a kid. She's not sick. She just had a...

Another parent saw me putting Lauren's equipment back into the van after a weekend of cub scout family camping. He asked how she was doing. I said she was doing great. (I always say that, unless she is really, really, really bad.) He then commented, "And they still make her do all that...

I'm so confused. DD, age 9, had a hard time breathing last night soon after she finished all of her breathing treatments (albuterol, hypersal 7%, pulmozyme, TOBI, flovent). She just kept taking deep breaths. Then she would run around the house with her brother instead of getting ready for...

Has anyone noticed a correlation between bedwetting and your kids getting sick? It seems to me that Lauren only wets the bed when she is getting a sinus infection. The worse the bedwetting, the worse the infection. Does this happen to anyone else? Or is this just one more way that Lauren...

My daughter cultured PA for the first time two weeks ago. They started her on 270 ml of IV Tobra 12 days ago while she was in the hospital. They tested her peak levels after two doses. I don't know the results but I know that they did not change the dose. After 8 doses the visiting nurse...

My daughter, Lauren, will be admitted to the hospital this afternoon for her first overnight stay since birth. She has a cough that has been worsening since it started as a cold on Labor Day. Now that it has moved into her lungs they decided it is time for more aggressive treatment - IV...

Our health insurance will be changing on November 1. The bad news is that the doctors at our current CF center won't take the new insurance. The good news is that the CF doctors at the other four centers that are within an hour of our home will. (Yes, we are very lucky to have so many centers...