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  1. M

    Should I keep giving her Cyproheptad?

    <br>Two weeks ago 6 years old DD started taking Cyproheptad to increase her apetite. She is at 18% percentile.   She gets very irritable, sleepy, mad, l she can't control her emotions. Is there anything else she can take to improve apetite without the nasty side effects.  I hate seeing my child...
  2. M

    Pari Nebulizers

    Could someone please tell me of a good and afordable place to buy the pari nebs?  Thanks in advance.<br>
  3. M

    Acapella

    DD is doing a lot better since she started taking her antibiotic, still coughing but not as bad as the days before.  She is back at school. She likes school but doesn't like to get up early. I hate to wake her up when she is sleeping so nice. She goes to bed between 7:00 pm or 8:00 pm and I wake...
  4. M

    Clindamycin

    <br>My 6 year old daughter  started taking Bactrim for mrsa but could not tolarate it, lots of nausea, acid reflux. Woke up during the night complaining of nausea and wanting to trow up.  We called the doctor and she prescribed CLINDAMYCIN.  I am worry abuot this antibiotic because I went on...
  5. M

    number of enzymes

    We recently changed from high calorie Carnation to the VHC Carnation (560 calories, 32 grams of fat) and increased the number of enzymes (Creon 10) our daughter takes with this based on the number of fat grams. We called the nutritionist at the CF Center here and she said that we should only...
  6. M

    What else should I be doing ?

    The last few weeks we have been blessed. DD is doing pretty well. she has been sleeping well. Her sinuses are not bad compared with last year when she couldn't sleep for weeks because of her allergies. We are doing creon 10 and mucinex every morning, vest twice a day and vitamax 1 a day. I know...
  7. M

    Yearly check up

    In two weeks my dd is having her yearly check up, you know drawing blood, etc etc. I hate this appt. I'm starting to feel anxious about it. Last year the nurse couldn't find her vein and stuck her several times. I absolutley hate this time and my husband is no help because he doesn't back me up...
  8. M

    Carnation Breakfast

    Should I give my almost 4 year old Carnation Breakfast 540 calories instead of the one with 370 calories? she never drinks the whole can but I was thinking I could give her more calories in smaller servings.
  9. M

    Vest on airplane

    Is it safe to take the vest on an airplane. Are there any special requirments from the airlines to be able to take it? This is the first time we are traveling since dd was diagnosed and I'm looking forward to see my familiy. My husband's family are not very close so I'm looking forward to take...
  10. M

    tonsils removed

    My daughter has had tonsilitis (?) twice in the last four weeks both times she was prescribed antibiotics and it seems to clear it up. When should we consider having her tonsils removed? Is this common with CF and is it helpful to have them removed?
  11. M

    5 months using Vest (HillRom) for free

    How long does it take for HillRom to file with the Insurance Company? We've been using the vest since November and they haven't file yet as far as we can tell. Is that common? Should I be concerned? I wish they file it now that we have insurance. Why is takins so long? Has anyone been through...
  12. M

    new

    I just wanted to say hello to everybody. My girl was diagnosed recently. We are still trying to understand all this. She is almost 4 years old and had lots of GI problems. Now that she is taking enzymes she is doing better. She used to eat a lot, poop a lot and doctors said everything was...
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