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Hey everyone, I have a quick question or two. I'm looking at buying a few extra medical supplies to keep around the house... I've noticed that syringes from our pharmacy are useless. After about the 4th or 5th time dosing medicines,the ink seems to begin rubbing off, and I don't feel...

* I found this via The American Heart Association at: <a target=_blank class=ftalternatingbarlinklarge href="http://www.americanheart.org/presenter.jhtml?identifier=3067033">http://www.americanheart.org/p...tml?identifier=3067033</a> -- and I figured other mom's might want to use it!*...

Hey Everyone! I'm sorry I haven't been on for a while. I've been around, but I've just been super busy. There's an amazing woman in Florida, by the name of Ellie Miller, who has a 19 year old Grandson with Cystic Fibrosis. I only met her recently, but she is a huge voice in our fight for...

Hey Everyone! I'm sorry I haven't been on for a while. I've been around, but I've just been super busy. There's an amazing woman in Florida, by the name of Ellie Miller, who has a 19 year old Grandson with Cystic Fibrosis. I only met her recently, but she is a huge voice in our fight for...

Hey everyone! This is kind of off topic, I hope no one minds... To make a long story short, I have a chance to get a full blooded, AKC registered Yorkie for my son and husband for Christmas. I'm allergic to most animals, and when we found out Paige had CF I didn't want to take a chance of her...

Hey Everyone! We have our next appointment with Paige's Dr. on the 10th. For those of you who don't know, we have to travel a little over 250 miles one way. I'm going up alone this time, just me and Paige, and since it's supposed to be snowing in our region, our Case worker booked us at the...

I have a friend who's an RN; and knows quite a bit about CF; offering me a Bemis 697 400 for $50. I've Googled it, but can't find much more then the normal specs. Has anyone here every heard of it? It's coming from a non CF family; and I know it's been well maintained, so I'm not really worried...

I've been keeping something to myself for a while now, and I don't feel that I can hide it any longer. A while back at one of Paige's CF visits, while discussing family history with our CF DR.; He became a little concerned over some things I told him. He decided that I needed to go to MY PCP and...

So being a newbie, I'm not sure if anyone else is aware of some of this stuff, but I found an awesome website, and some really great products, that I think would be AWESOME for a CFer/CFmom! The site is www.onestepahead.com and here is what I found! <a target=_blank...

I'm not sure if this applies, but I thought it might be of interest since so many Cfers are taking Tamiflu right now! Just wanted to put this out there in case it does <img src="i/expressions/face-icon-small-smile.gif" border="0"> <a target=_blank class=ftalternatingbarlinklarge...

Hey everyone! Sorry I've been MIA for a bit. My laptop fell off the recliner while I was moving Paige one day, and the battery went kaput! Anyways, we had a Check-Up on the 17th, and things went GREAT! Paige is up to 12lbs. 8oz. and she's 24 inches long!! She's at the 25% for her weight, 50%...

Soooo my wonderful hubby took me out to a fancy restaurant the other night. It was the first night I've been out of the house in DAYS....Anyways, I started feeling like my allergies were acting up at the restaurant, and by the end of that evening, I was starting to feel worse and worse. I...

My husband is selling his truck, so we can get a more gas efficient vehicle to take Paige back and fourth to Kansas City for her Dr's apt's. It's a 3 hour drive, and about 250 miles one way, so we need all the help we can get!! I know it's not really CF related, but if anyone's interested, or...

My husband is selling his truck, so we can get a more gas efficient vehicle to take Paige back and fourth to Kansas City for her Dr's apt's. It's a 3 hour drive, and about 250 miles one way, so we need all the help we can get!! I know it's not really CF related, but if anyone's interested, or...

<a target=_blank class=ftalternatingbarlinklarge href="http://news.yahoo.com/s/nm/20090828/hl_nm/us_flu_pandemic">http://news.yahoo.com/s/nm/200.../hl_nm/us_flu_pandemic</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://news.yahoo.com/s/nm/20090828/hl_nm/us_flu_pandemic">http://news.yahoo.com/s/nm/200.../hl_nm/us_flu_pandemic</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://news.yahoo.com/s/nm/20090828/hl_nm/us_flu_pandemic">http://news.yahoo.com/s/nm/200.../hl_nm/us_flu_pandemic</a>

I posted this in my blog, but I'm starting to dislike the way our blogs work, because no one really saw it, and everyone's been asking about our Clinic Visit! SOOO....I'll post it here <img src="i/expressions/face-icon-small-smile.gif" border="0"> Hey Everyone! Sorry to wait so long after our...

We just got Paige's Nebulizer Friday, it's the Pari LC (I believe). We've done 3 treatments so far, and at the end of each treatment, there's always a little medicine left in the bottom of the cup. Is this normal?? She's only taking Albuterol right now, and it's one ampule per treatment. Also...

I recently read the post regarding the H1N1 Flu & There didn't seem to be too much information for CFer's in the responses. I'm a member of Cystic-L and remembered that we recently had a discussion regarding this pandemic. We have a gentlemen member that is very involved in the tracking of this...