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Step son came back from pool today (been hanging out there for a few weeks w/o sunscreen) and his face looks swollen to me, especially around his nose. He is on TOBI and I was just wondering if this could be a reaction or if anyone has ever had swelling on TOBI or any other inhaled med around...

My step-son has lived with us for two years, he is almost 14 and has CF. His mother recently got back on her feet and wanted her to come back and live with her, its pretty complicated but he left. He is several states away now, since mid Sept and I am so worried about him. His pharmacy has...

Hi, I just have a question about my step-son whom has CF. He wants to try out for Basketball for his Middle School and they have to get a sports physical done. Has anyone ever had a problem getting approval with CF? I just want to be prepared for what his physician might say. I know if they...

I really wish I would have got a copy of this test, I had it in my hand and thought it was our copy, then the doc asked to see it and I forgot to get it back, or at least get a copy. I took my step-son (12) to his CF appointment on Tuesday. They did the PFT test. He has been coughing a lot more...

Hi Everyone, Just wanted to share some photo's with all of you. Cameron got his wish to granted by the make a wish foundation and we all went to New York! We had a blast! We saw the statue of liberty, the empire state building and best of all Cameron got to meet the NY Yankees! And they were all...

I just wanted to share, some of you have been so extremely supportive through all of this and I thought you might be interested in reading our story. The Link <a target=_blank class=ftalternatingbarlinklarge href="http://www.navytimes.com/story.php?f=0-NAVYPAPER-1667234.php...

Just wanted to share my latest project.lol <a target=_blank class=ftalternatingbarlinklarge href="http://www.onetruemedia.com/otm_site/view_shared?p=352a2b76e9f3468ce10ad">http://www.onetruemedia.com/ot...=352a2b76e9f3468ce10ad</a>

Andrew is having problems ranging from A to Z, I feel so overwhelmed and like doctors don't know much more than me. He is six months old, he also has cerebral palsy which really complicates things. He has a g-tube, and doesn't take much if any formula (pregestimil) by mouth. He is on a 20 hour a...

I just had to ask. My step-son has come to live with us for good. I knew he was coming and I refilled his prescription for MT20 and then once he got here we learned he has changed to a different enzyme. So now we have two bottles/ 1000 capsules unopened factory sealed. I just hate to throw them...

I know this forum has been in an uproar lately, but I hope some of you might share your experiences with me in regard to the colostomy reversal. Andrew had surgery last Tuesday 10/11/05 and now we are in the "waiting for poopie mode". I never knew this was going to be so stressful. Andrew is in...

My baby was released from the NICU on Friday and they sent me home with Pregestimil formula but there was no mention of enzymes. Unfortunately, I haven't met with the CF doctor yet so I was curious as to if he should be taking enzymes. Does anyone have experience with Pregestimil? Does it not...

Hi everyone, Andrew was born on 8/27/05 at 39 weeks. Some of you may remember he was showing a dilated bowel (we knew he had CF) at my 34 week L2 U/S, it was dilated 1 cm. At my 36 week L2 u/s it was dilated 1.7 and at my last u/s at 38 weeks it was dilated 2.6 cm. Unfortunately, as many of you...

Hi, My step-son (11) stays with us through the summer, he is on the pulmozyme and albuteral (neb) and does the vest twice a day plus other oral meds. He started complaining of a head ache last night and some pain in his chest. I gave him two advil before bed to see if it was just from playing...