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catching up with b.cepacia
Thank you for your thoughts. I think that is the one thing with Cepacia, it has made us feel very alone and isolated.As far as an FEV1 he has lost about 35% since culturing Cepacia. He use to go into the hospital about once a year for a "tune-up". Cory hates all the isolation stuff so now we... -
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catching up with b.cepacia
My son is 17 years old. He just cultured Cepacia for the first time in October. He has been on IV antibiotics since August constantly until about 2 weeks ago. I can tell that we will probably be back on them within the next appointment. This is also the first time he has been off Predisone... -
C
catching up with b.cepacia
I do know that when a person cultures Cepacia, it is sppose to be sent to Michiagan to test for the strain. I am not sure how new this procedure is. I guess that is why I asked. My son has strain 3 and Cepacia syndrome. When our doctor called the lab in New York(the lab to test for...