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  1. A

    Going for a sweat test UPDATE

    Hello...my son too had a borderline sweat test...2 actually. He has been hospitalized about 8 times and he is only a year old. We had genetic testing done which all came back saying "can not rule out CF" Finially he got sick enough where they had to do a bronchioscopy and saw that he had a...
  2. A

    Going for a sweat test UPDATE

    Hello...my son too had a borderline sweat test...2 actually. He has been hospitalized about 8 times and he is only a year old. We had genetic testing done which all came back saying "can not rule out CF" Finially he got sick enough where they had to do a bronchioscopy and saw that he had a...
  3. A

    Going for a sweat test UPDATE

    Hello...my son too had a borderline sweat test...2 actually. He has been hospitalized about 8 times and he is only a year old. We had genetic testing done which all came back saying "can not rule out CF" Finially he got sick enough where they had to do a bronchioscopy and saw that he had a...
  4. A

    went into emergency room last night

    I have to say something here...first of all I am very sorry to hear you are so sick and without many answers as to what is going on......I have to add a comment here for Jennifer...Jennifer I am a nurse...HOWEVER this site is a CF site for advice and support. If I can help someone by offering...
  5. A

    went into emergency room last night

    I have to say something here...first of all I am very sorry to hear you are so sick and without many answers as to what is going on......I have to add a comment here for Jennifer...Jennifer I am a nurse...HOWEVER this site is a CF site for advice and support. If I can help someone by offering...
  6. A

    went into emergency room last night

    I have to say something here...first of all I am very sorry to hear you are so sick and without many answers as to what is going on......I have to add a comment here for Jennifer...Jennifer I am a nurse...HOWEVER this site is a CF site for advice and support. If I can help someone by offering...
  7. A

    Sweat test or not?

    I would get the sweat test done!! Never bad to be too careful....it is worth it...we went through hell trying to figure out what was wrong with my son...I can not tell you how long it took and how sick he was at times...I would def. try to rule it out
  8. A

    Sweat test or not?

    I would get the sweat test done!! Never bad to be too careful....it is worth it...we went through hell trying to figure out what was wrong with my son...I can not tell you how long it took and how sick he was at times...I would def. try to rule it out
  9. A

    Sweat test or not?

    I would get the sweat test done!! Never bad to be too careful....it is worth it...we went through hell trying to figure out what was wrong with my son...I can not tell you how long it took and how sick he was at times...I would def. try to rule it out
  10. A

    Please.. Anyone have any ideas???

    I would have them test right away for RSV.....My daughter had this EIGHT times and I had to insist they test for it....This is a very very rough virus on the respiratory system...I would have them do that ASAP...I hope your little one feels better soon
  11. A

    Please.. Anyone have any ideas???

    I would have them test right away for RSV.....My daughter had this EIGHT times and I had to insist they test for it....This is a very very rough virus on the respiratory system...I would have them do that ASAP...I hope your little one feels better soon
  12. A

    Please.. Anyone have any ideas???

    I would have them test right away for RSV.....My daughter had this EIGHT times and I had to insist they test for it....This is a very very rough virus on the respiratory system...I would have them do that ASAP...I hope your little one feels better soon
  13. A

    Cf with no mutations?

    I can relate to you 100 percent. I have a baby boy that is a year old and has been sick since he was 2 weeks old and in the hospital 7 to 8 times. They have tested him for EVERYTHING and then decided to test for CF due to him being FTT and oily stools as well as ALWAYS congested and "wet lungs"...
  14. A

    Cf with no mutations?

    I can relate to you 100 percent. I have a baby boy that is a year old and has been sick since he was 2 weeks old and in the hospital 7 to 8 times. They have tested him for EVERYTHING and then decided to test for CF due to him being FTT and oily stools as well as ALWAYS congested and "wet lungs"...
  15. A

    Cf with no mutations?

    I can relate to you 100 percent. I have a baby boy that is a year old and has been sick since he was 2 weeks old and in the hospital 7 to 8 times. They have tested him for EVERYTHING and then decided to test for CF due to him being FTT and oily stools as well as ALWAYS congested and "wet lungs"...
  16. A

    Choosing a Center - CHOP vs duPont

    I am just throwing this in there but I love Dr. Dovey over at St. Christophers children's special care hospital...he is great as a doctor...great the way he explains things and most of all great with the kids!!!
  17. A

    Choosing a Center - CHOP vs duPont

    I am just throwing this in there but I love Dr. Dovey over at St. Christophers children's special care hospital...he is great as a doctor...great the way he explains things and most of all great with the kids!!!
  18. A

    Choosing a Center - CHOP vs duPont

    I am just throwing this in there but I love Dr. Dovey over at St. Christophers children's special care hospital...he is great as a doctor...great the way he explains things and most of all great with the kids!!!
  19. A

    It is now official

    Thank you everyone for your thoughts and support!! The poor little guy is ALWAYS congested...and I mean ALWAYS. It sounds like he is sick all the time. Hopefully he will start to get a little less congested soon..He has been on Pulmacort, xopenex, albuteral, prednisone, as well as a bunch of...
  20. A

    It is now official

    Thank you everyone for your thoughts and support!! The poor little guy is ALWAYS congested...and I mean ALWAYS. It sounds like he is sick all the time. Hopefully he will start to get a little less congested soon..He has been on Pulmacort, xopenex, albuteral, prednisone, as well as a bunch of...
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