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A friend sent me this today in an email, and it was so moving I wanted to share. It is long, but well worth the read. Don't Leave It On The Desk There was a certain Professor of Religion named Dr Christianson, a Studious man who taught at a small college in the western United States. Dr...

Just wondering if Joanne or anyone has an update on Lo. She has been in my prayers.

My 2 1/2 yo daughter is terrified of her clinic visits. From the time we walk through the doors to the back, she cries. She screams during blood pressure (so, we often don't get one), weight check, height, everything. We have tried everything in an attempt to distract her. I bought a set of...

I finally checked out how to do it, and have created a video montage for Reilly. <img src="i/expressions/sun.gif" border="0"> Check it out & let me know what you think. If the link doesn't work, you may have to cut & paste it. Thanks! <a target=_blank class=ftalternatingbarlinklarge...

Reilly was just put on Pulmozyme and Singular yesterday. She has had a cold for a while (really since September, on and off) and she just can?t seem to shake the cough. The Doc also put her on an antibiotic to try to help. (She hasn?t been on Tobi yet, but I have a feeling that will be coming...

At my daughter's clinic visit on Friday, the Dr. mentioned that when Reilly gets a little bigger, she will get the vest. My question is, how much does the child have to weigh, or how big does she have to be before we can get it? I have read the past posts, but haven't seen anything indicating...

For the first time, I have been seeing advertisement by the CFF. I check usatoday.com each morning, to get an update on the news, and they have a good sized advertisement about how to donate to CFF. Has anyone else noticed it? <img src="i/expressions/face-icon-small-cool.gif" border="0">

My Daughter came home yesterday afternoon, and had a very hoarse voice. Today it is not any better, and I am concerned she may be losing her voice. I am assuming this could be attributed to seasonal allergies, but was wondering if this could be a side effect of any of her cf meds. She is on...