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Congratulations on your fund raising!! Being a Butler County native, I know Moraine is a great park. If you ever make it out to mid-Michigan, we would be happy to have you join in our fund raising efforts here.

Three weeks later and after heavy "trach" training and ventilator training, our son is adjusting fairly good to life with a trach. Our hospital tells us that they have "never" had a CF baby with a trach before so it is a first for the staff there, as well as us. And it complicates things a...

Our son is currently hospitalized with complications from CF, meconium ileus, and tracheomalacia. He just turned 11 weeks old last week. The "whole bowel" issue was scary, but his breathing issues far outweigh that. Read all you can, ask all. You can, and make sure your hospital is an...

Our son was diagnosed at 9 days old with CF and now has spent 45 days of the first 11 weeks of his life at the hospital. He was born with meconium ileus and made it thru the operation for that, but now his CF mucus build up combined with his trachea malacia is so severe he can barely breath and...

Good luck with the sweat test but concentrate on, as the last poster suggested, an accreditted CF center to handle your daughters care. Our daughter was diagnosed at birth with the same gene issues and now just turned 3. You will need to quickly learn her meds to provide her with the...

Good luck with the sweat test but concentrate on, as the last poster suggested, an accreditted CF center to handle your daughters care. Our daughter was diagnosed at birth with the same gene issues and now just turned 3. You will need to quickly learn her meds to provide her with the...

Our daughter was in the clinical study on this from age 24 months to 30 months. It did make her cough quite hard and deep during the neb treatment. But the neb (orsaline container) did make a difference as she did receive more meds quicker with certain containers. The taste and nose irritation...

Our daughter was in the clinical study on this from age 24 months to 30 months. It did make her cough quite hard and deep during the neb treatment. But the neb (orsaline container) did make a difference as she did receive more meds quicker with certain containers. The taste and nose irritation...

<P>We felt the same helplessness after we were told our daughter (age 9days) had failed the so called "sweat" test. It seemed to me like a very silly test to find such a serious major illness? But the results were correct and be thankful you will be able to learn and manage this disease from an...

<P>We felt the same helplessness after we were told our daughter (age 9days) had failed the so called "sweat" test. It seemed to me like a very silly test to find such a serious major illness? But the results were correct and be thankful you will be able to learn and manage this disease from an...