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  1. C

    What would you do?

    What wold you do if you found out that there was another cfer on your childs school, in the same hall and they had cepacia? This has happened to me and it has turned into a fight with the school.I found out and asked the school nurse to make sure they didn't sit next to each other in assemblies...
  2. C

    Need Help With My Husband

    Hi I need help, my husband has never diagnosed with CF because he is scared to know the answer. He had 2 sisters that have passed away and we have been told our 3 kids have a typical. With that being said he had to have a physical done for work he has been healthy lately he has changed his diet...
  3. C

    I need advice

    I have a quick question... My 6 year old had gentic testing done in Dec.and it came back that he had 5t 7t. He has had respitory problems and family history that was the reason for the testing. He has never had a problem with his weight, he did have problems with constipation when he was a...
  4. C

    I need Advice please

    <br>My son has A typical cf we do neb treatments, vest, enzymes etc. He is 3 yrs old hospitalized 5 times for respitory infections and testing postive for different bacterias. The last year and a half he has had a fever everyday not always high somewhere between 99.7 and 100.5. He acts sick gets...
  5. C

    Questions about my son who has A Typical CF

    My son and daughter have atypical cf. My daughter is doing great we do her treatments everyday, she is in school and loving it. My son is 2 and has been sick pretty much his whole life. His sweat test was negative, we did an ambrey test when he was about 8 months old and it came back that he has...
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