Search results

I was wondering if anyone has experienced false negatives in newborn screening? Iowa has recently mandated CF screening for newborns. My niece born in Sept must have come back with normal numbers, but has been having major resp. issues as well as back and forth bowels....extremely loose and foul...

What is up with the Hardee's commercials and all of the people SHOVING food in their mouths? They all look like pigs! It is not appetizing at all! And the Banquet commercial with the chick doing some dumb dance in the backyard because of a crock pot meal? Which ones get on your nerves?

I am starting to take a real interest in becoming an organ donor myself and promoting organ donation. I have a question though... Do you know if I am an organ donor, can I specify that my lungs go to say any CF patient and NOT someone such as a smoker with self inflicted bad lungs? I called a...

Seeing Allan and Jessica's story on how they met made me think of my own relationship with my husband and how we met. I love to hear stories like that and thought maybe it would be a nice light hearted topic during such a sad CF time. So here's our little how we met story... My parents had...

We're getting ready to send my 'baby' cousins off to Iraq. The family is getting together tonight and they will leave in October. I still remember them as hyper-active, annoying little boys. <img src="i/expressions/face-icon-small-wink.gif" border="0"> The oldest and youngest of the four boys...

I finally figured out this picture attaching feature. Very cool! Here is a picture of Cale in our boat. Notice his hand on the throttle. All boy! Oh, and that is not his can! And Cassie after her attempt to become her own hairstylist. She took the scissors to her bangs...she thinks. Has anyone...

What is the best/cheapest/easiest way to start up and run a website? We would like to have one for our business. I don't think we're ready to accept payments via web, but would like to show our stuff on the site along with our page dedicated to CF Fundraising. Ideas? We're in the vinyl graphic...

We read in our paper that Iowa is adding CF in their screening in newborn babies. Think of the year and a half of testing on Cale we could have saved! It has actually caught a lot of attention as others have noticed it a commented to me be about it. Good news. Hopefully other states will follow...

"Elephants are dancing in my tummy" This is what my 2 year old has been telling me when he gets a stomach ache. (I'm sure it is gas) I don't know if he heard it somewhere or what, but it makes me smile and brings tears to my eyes at the same time. He has the sweetest little voice. We made up...

I read last week that hospitals in our capital city are banning smoking from anywhere on hospital grounds, including in your own car! I hope this is a sign of things to come and hope that our hospital will be picking up this policy! There's nothing more annoying than carrying your child with a...

I'm still learning so much about CF. My family and friends have really been generous with their time and money to help raise money for CFF. I was just wondering if anyone here has been an advocate also in raising money/awareness for organ donors. If so, what specifically do you do? I saw a...

I know this has been on here before, but we are getting ready for our GREAT STRIDES walk. Does anyone have a letter campaign that they sent out that has been successful? I can download the one from CFF, but didn't know if someone tried something else. Thanks! Happy walking! <img...

Hi. I was wondering if anyone has problems with bloody noses? Is it CF related or possibly dry air? My son is 2 and just started a new anti biotic and the next morning we woke with a bloody nose for the first time ever. He hasn't had one since, but it's been nagging at me to what may have caused...

We are coming up on the one year anniversary of our son being diagnosed. And though it has definitely changed our life-mostly in our attitudes towards life- I was hoping that those with CF could give me their input on this... What was the best thing your parents did in raising you? The worst...