Search results

  1. G

    Twins?

    I had identical twin girls last July and both have CF. DDF508 Mutation Both are 16 months old now and doing great! :)
  2. G

    Anybody in the Atlanta (south of ATL) area with Kids with CF?

    Just wondering if there are any parents of CF kids on here that live south of Atlanta or near ATL?
  3. G

    Anybody in the Atlanta (south of ATL) area with Kids with CF?

    Just wondering if there are any parents of CF kids on here that live south of Atlanta or near ATL?
  4. G

    Anybody in the Atlanta (south of ATL) area with Kids with CF?

    Just wondering if there are any parents of CF kids on here that live south of Atlanta or near ATL?
  5. G

    Son had abnormal Newborn test.. Please Read have to wait 12/6 for sweat test

    Hey Vikki, I have twin daughters who were diagnosed with CF at 6 wks. of age. Neither of them tasted salty at all to me until recently (they're 4 mos. old). And even now, it's not a "WHOA, in your face type salty...just salty as in..they're hot and sweaty" I taste salty when I sweat, but I...
  6. G

    Son had abnormal Newborn test.. Please Read have to wait 12/6 for sweat test

    Hey Vikki, I have twin daughters who were diagnosed with CF at 6 wks. of age. Neither of them tasted salty at all to me until recently (they're 4 mos. old). And even now, it's not a "WHOA, in your face type salty...just salty as in..they're hot and sweaty" I taste salty when I sweat, but I...
  7. G

    Son had abnormal Newborn test.. Please Read have to wait 12/6 for sweat test

    Hey Vikki, <br /> <br />I have twin daughters who were diagnosed with CF at 6 wks. of age. Neither of them tasted salty at all to me until recently (they're 4 mos. old). And even now, it's not a "WHOA, in your face type salty...just salty as in..they're hot and sweaty" I taste salty when I...
  8. G

    Sweat Test

    Hannah4025 - They're doing the same thing with my twin daughters. They were diagnosed by DNA test at 6 weeks old with CF and they still did a sweat test, which at the time, they were too young and didn't sweat, soooooo, they will have another test done on Dec. 1st and they'll be almost 5 months old.
  9. G

    Sweat Test

    Hannah4025 - They're doing the same thing with my twin daughters. They were diagnosed by DNA test at 6 weeks old with CF and they still did a sweat test, which at the time, they were too young and didn't sweat, soooooo, they will have another test done on Dec. 1st and they'll be almost 5 months old.
  10. G

    Sweat Test

    Hannah4025 - They're doing the same thing with my twin daughters. They were diagnosed by DNA test at 6 weeks old with CF and they still did a sweat test, which at the time, they were too young and didn't sweat, soooooo, they will have another test done on Dec. 1st and they'll be almost 5 months old.
  11. G

    Actions to be taken for a 5 month baby-need help!!!

    agree to all of the above posts <img src="i/expressions/face-icon-small-smile.gif" border="0"> My twin daughters are now 2 1/2 months old and we have been to our first clinic visit and will learn CPT and how to use the nebs next week. They have told us that there is no need to USE the nebs right...
  12. G

    Actions to be taken for a 5 month baby-need help!!!

    agree to all of the above posts <img src="i/expressions/face-icon-small-smile.gif" border="0"> My twin daughters are now 2 1/2 months old and we have been to our first clinic visit and will learn CPT and how to use the nebs next week. They have told us that there is no need to USE the nebs right...
  13. G

    Actions to be taken for a 5 month baby-need help!!!

    agree to all of the above posts <img src="i/expressions/face-icon-small-smile.gif" border="0"> My twin daughters are now 2 1/2 months old and we have been to our first clinic visit and will learn CPT and how to use the nebs next week. They have told us that there is no need to USE the nebs right...
  14. G

    Any Thoughts?

    Hey! I have identical twins that both had elevated IRT levels on their newborn screen. They both had sweat tests done that were inconclusive, so the only way we knew for certain it was CF was through the DNA test that they did using the blood sample taken for the newborn screen. You might ask if...
  15. G

    Any Thoughts?

    Hey! I have identical twins that both had elevated IRT levels on their newborn screen. They both had sweat tests done that were inconclusive, so the only way we knew for certain it was CF was through the DNA test that they did using the blood sample taken for the newborn screen. You might ask if...
  16. G

    Any Thoughts?

    Hey! I have identical twins that both had elevated IRT levels on their newborn screen. They both had sweat tests done that were inconclusive, so the only way we knew for certain it was CF was through the DNA test that they did using the blood sample taken for the newborn screen. You might ask if...
  17. G

    Twins with CF?

    I am about 1/4 of the way through the book. My Mother-in-law found it and I saw it at her house yesterday, so of course, I've picked it up and haven't put it down <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also found Isa on Facebook! I would love to meet them one day and...
  18. G

    Twins with CF?

    I am about 1/4 of the way through the book. My Mother-in-law found it and I saw it at her house yesterday, so of course, I've picked it up and haven't put it down <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also found Isa on Facebook! I would love to meet them one day and...
  19. G

    Twins with CF?

    I am about 1/4 of the way through the book. My Mother-in-law found it and I saw it at her house yesterday, so of course, I've picked it up and haven't put it down <img src="i/expressions/face-icon-small-smile.gif" border="0"> I also found Isa on Facebook! I would love to meet them one day and...
  20. G

    A bit depressed

    Take heart in knowing that at least you found out early! My husband and I keep telling ourselves, that things could always be worse! I delivered identical twin girls on 7/7/10 and 4 weeks later through a DNA test found out that they have CF. We went through the same devastation for about a week...
Top