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My son, Parker, has been on Pulmozyme since he was just 3wks old. The day he got his dx is the day he started all meds. I questioned everything, especially if the medications were safe for such a young child as studies are not geared towards children as young as he was but I left it in the hands...

My son has cultured staph since he was 3wks old. It's his "baseline" culture and we don't treat it. He has not cultured anything new and is now 19 months. Really, staph is quite a common culture like Deb said above. It's all around us and grows on our skin even. Not much we can do to keep staph...

Hi Steve. I posted shortly after we received the results of my sons genetic screen last January (2011) and have since actually gotten the report printed off and was wondering if there was any information related to his screening. Last time I had posted there wasn't any information on his...

While I want to say don't keep your kid in a bubble I think there are exceptions to this... one would be knowingly exposing your child to an adult that has more then likely cultured bugs that your child hasn't. "I" personally would never do this, however, every decision IS a personal decision. I...

While I want to say don't keep your kid in a bubble I think there are exceptions to this... one would be knowingly exposing your child to an adult that has more then likely cultured bugs that your child hasn't. "I" personally would never do this, however, every decision IS a personal decision. I...

Hi Steve. I posted shortly after we received the results of my sons genetic screen last January (2011) and have since actually gotten the report printed off and was wondering if there was any information related to his screening. Last time I had posted there wasn't any information on his second...

My son has been on Pulmozyme since he was 8wks old. We've never had any issues with it and in fact I believe that it's a GREAT preventative aersolized treatment! My son is now 16 months old and just got over his first illness.

My son has been on Pulmozyme since he was 8wks old. We've never had any issues with it and in fact I believe that it's a GREAT preventative aersolized treatment! My son is now 16 months old and just got over his first illness.

It appears as tho voting is once per day as I tried voting again today and it told me to return at midnight to place my vote for tomorrow. NO PURCHASE NECESSARY. Voting open to the legal residents of 50 U.S. & DC, 18+. Void where prohibited. Regional Nominating Period: 3:00 PM ET on 1/18/12...

It appears as tho voting is once per day as I tried voting again today and it told me to return at midnight to place my vote for tomorrow. NO PURCHASE NECESSARY. Voting open to the legal residents of 50 U.S. & DC, 18+. Void where prohibited. Regional Nominating Period: 3:00 PM ET on 1/18/12...

I have to also note that the brain eating amoeba entered through the sinuses by using straight tap water in what one can only assume was already an unsterilized netti pot. If you take the proper steps in sterilizing neb pieces, and not just using plain ol' tap water to clean them, I'm sure the...

I have to also note that the brain eating amoeba entered through the sinuses by using straight tap water in what one can only assume was already an unsterilized netti pot. If you take the proper steps in sterilizing neb pieces, and not just using plain ol' tap water to clean them, I'm sure the...

I really believe that when they say "no" tap water they mean no tap water as a FINAL rinse. I also do not use a dishwasher as I have this fear that there is all kinds of nasties building up in there and that is certainly not any place *I* want my sons neb pieces hanging out. For my sons neb...

I really believe that when they say "no" tap water they mean no tap water as a FINAL rinse. I also do not use a dishwasher as I have this fear that there is all kinds of nasties building up in there and that is certainly not any place *I* want my sons neb pieces hanging out. For my sons neb...

Just to tell you -- my son is 14 months old and other then pancreatic insufficiency he has had NOT A SINGLE other "symptom" of CF. You have to remember -- CF is progressive and generally speaking a lot of kiddos (unless born with MI) tend to show no outward signs of CF initially. If you have...

Just to tell you -- my son is 14 months old and other then pancreatic insufficiency he has had NOT A SINGLE other "symptom" of CF. You have to remember -- CF is progressive and generally speaking a lot of kiddos (unless born with MI) tend to show no outward signs of CF initially. If you have...

First of all, CONGRATS!! Make sure you take the time to enjoy your little one because regardless of this stupid disease they still get big and mouthy at some point! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> <div class="FTQUOTE"><begin quote><i>Originally posted by...

First of all, CONGRATS!! Make sure you take the time to enjoy your little one because regardless of this stupid disease they still get big and mouthy at some point! <img src="i/expressions/face-icon-small-tongue.gif" border="0"> <div class="FTQUOTE"><begin quote><i>Originally posted by...

I wish there was a straight answer from every clinic that was the exact same. It seems every clinic gives different advice on what to do or not to do. Really irritates me <img src="i/expressions/face-icon-small-sad.gif" border="0"><br> <br>We were told to not ever use any type of humidifier as...

I wish there was a straight answer from every clinic that was the exact same. It seems every clinic gives different advice on what to do or not to do. Really irritates me <img src="i/expressions/face-icon-small-sad.gif" border="0"><br> <br>We were told to not ever use any type of humidifier as...