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Brian had follow up today...was pretty worried. But his pft was up to 36%!!! he still feels more sob than before, but his baseline is 37-40! the dr wants us to see an infectious disease specialist in a cpl wks and he is going to get a port placed in the next month and we are starting the work up...

ok, the new germ brian has that we can't seem to get rid of is called alcaligenes. anyone ever heard of this?? in the hosp he was on coliston for 12 days and high dose oral bactrim. his pft went down a percent.... so just wondering if anyone else has had this germ and has had success getting rid...

I just joined the group tonight.. it has been a rough month. My husband has had a baseline pft of 37-40 for the past 10ish years. In the beginning of Dec, he got sick and his pft is down to 28! this is after 2 wks oral antibx, 1wk outpt iv antibx, and 2 wks of coliston inpt. we are both having...