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My story is very similar to aspiemom! I started reading it and thought maybe I had already chimed in! I am 56 and started declining a few years ago. After being put in the hospital for my first IV antibiotics a year ago March, my pulmonary doc had my genes mapped. DF508 and Arg347. That...

Just been told I have damage to my inner ears from a 2 week IV of Tobramycin. I now need Vestibula Physical Therapy. Has anyone else had this happen or any other side effects from this drug? Thanks Karen (formerly vivsmom - id was changed) 56, diagnosed at 55 CF. D508 and Arg347. Pancreatic...

Just been told I have damage to my inner ears from a 2 week IV of Tobramycin. I now need Vestibula Physical Therapy. Has anyone else had this happen or any other side effects from this drug? Thanks Karen (formerly vivsmom - id was changed) 56, diagnosed at 55 CF. D508 and Arg347. Pancreatic...

Hi, I have found Pillboxie extremely useful. You can input your medications and what time you take them. It also has an alert. I also use Wellnote - not for the medications portion as I use Pillboxie for those - but for the history. I can keep track of hospital visits, tests, family history...

Hi, I have found Pillboxie extremely useful. You can input your medications and what time you take them. It also has an alert. I also use Wellnote - not for the medications portion as I use Pillboxie for those - but for the history. I can keep track of hospital visits, tests, family history...