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My kids are considerd carriers, but that may change. We have an appointment with the head of our CF clinic coming up. They are both PI, both get many infections - respitory, sinus all year long, and DSs lung has collapassed once.

I did get a name of a doctor at another clinic close by, so I am going to make an appointment there and see what they say. According to our current doc, they don't want to dx them with cf because of insurance, b/c of everything it would entail, and because he feels that with the negative sweat...

Just sent you a pm.

I know that I have posted about this many times before, but we are seeing a new doctor in August, and I am trying to get my thoughts together. It is a doctor at the same clinic that we currently go to, so if anyone has any other suggestions near the Boston area, I would love those names as well...

DD takes gymnastics. She has a favorite teacher, who does not teach her class, but does have her on occassion. I mentioned something in passing a few weeks ago, about DD and DS having CF. She told me the next week that she did as well. DD REALLY, REALLY, REALLY wants to take private lessons from...

DD takes gymnastics. She has a favorite teacher, who does not teach her class, but does have her on occassion. I mentioned something in passing a few weeks ago, about DD and DS having CF. She told me the next week that she did as well. DD REALLY, REALLY, REALLY wants to take private lessons from...

My kids each have 1 mutation - s1235r. They both have a lot of pancreatic stuff going on, as well as some respitory issues. DS tends to get pnuemonia a few times a year, and DD has a lot of sinus issues. Right now they are labled as CRMS, and we see pulm every 4 months. He feels that they are...

My kids each have 1 mutation - s1235r. They both have a lot of pancreatic stuff going on, as well as some respitory issues. DS tends to get pnuemonia a few times a year, and DD has a lot of sinus issues. Right now they are labled as CRMS, and we see pulm every 4 months. He feels that they are...

Our ER brings us to a room right away. We may have to wait for a while in a room, but we never stay in the waiting room. Even when DD broke her arm, we were moved back right away. Our hospital gave us a blue card for each child, and if we hand them the blue card anywhere - ER, blood, x-ray, we...

Our ER brings us to a room right away. We may have to wait for a while in a room, but we never stay in the waiting room. Even when DD broke her arm, we were moved back right away. Our hospital gave us a blue card for each child, and if we hand them the blue card anywhere - ER, blood, x-ray, we...

Our ER brings us to a room right away. We may have to wait for a while in a room, but we never stay in the waiting room. Even when DD broke her arm, we were moved back right away. Our hospital gave us a blue card for each child, and if we hand them the blue card anywhere - ER, blood, x-ray, we...

Lauren - One of them had sweat tests of 59, 56, and 39. The other one was 36 and 59. They are both repeating the sweat test in November. I think I am going to call and get them to give DD2 a sweat test that day as well, and have them draw labs for her when we are in clinic.

Lauren - One of them had sweat tests of 59, 56, and 39. The other one was 36 and 59. They are both repeating the sweat test in November. I think I am going to call and get them to give DD2 a sweat test that day as well, and have them draw labs for her when we are in clinic.

<BR>Lauren - One of them had sweat tests of 59, 56, and 39. The other one was 36 and 59. They are both repeating the sweat test in November. I think I am going to call and get them to give DD2 a sweat test that day as well, and have them draw labs for her when we are in clinic.

<P>Ok, so one more question.</P> <P> </P> <P>If she comes back showing the S1235R mutation, then what? Do we treat her when she may not have cf? Do we assume that she is just a carrier?</P>

<P>Ok, so one more question.</P> <P></P> <P>If she comes back showing the S1235R mutation, then what? Do we treat her when she may not have cf? Do we assume that she is just a carrier?</P>

<P><BR>Ok, so one more question.</P> <P></P> <P>If she comes back showing the S1235R mutation, then what? Do we treat her when she may not have cf? Do we assume that she is just a carrier?</P>

<P>Thank you guys for your thoughts. See, if they could rule it out, I would do it in a heartbeat. I just don't want the limbo for her that the other two are in.</P> <P> </P> <P>I never even questioned it with her, until she came to an appointment with us and they noted her small size. She is...

<P>Thank you guys for your thoughts. See, if they could rule it out, I would do it in a heartbeat. I just don't want the limbo for her that the other two are in.</P> <P></P> <P>I never even questioned it with her, until she came to an appointment with us and they noted her small size. She is...

<P><BR>Thank you guys for your thoughts. See, if they could rule it out, I would do it in a heartbeat. I just don't want the limbo for her that the other two are in.</P> <P></P> <P>I never even questioned it with her, until she came to an appointment with us and they noted her small size. She is...