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  1. C

    Most infections at once?

    I am 14 and when I was 13 I had Bronchitis, Pnuemonia, Psuedomonus, MRSA, and the flu (I know it's not an infection but thought I would add it in) and my FEV1 dropped from 100% to 68%. So what is the most infections in your lungs you have ever had at once? What were they? How much did your FEV1...
  2. C

    Most infections at once?

    I am 14 and when I was 13 I had Bronchitis, Pnuemonia, Psuedomonus, MRSA, and the flu (I know it's not an infection but thought I would add it in) and my FEV1 dropped from 100% to 68%. So what is the most infections in your lungs you have ever had at once? What were they? How much did your FEV1...
  3. C

    Anyone culture MRSA

    Also even if MRSA doesn't like Pseudomonas around, it does higher the risk of Pneumonia.
  4. C

    Anyone culture MRSA

    Also even if MRSA doesn't like Pseudomonas around, it does higher the risk of Pneumonia.
  5. C

    What song do you relate your CF fight to

    Good Riddance (Time of your life) by Green Day. Also Superman by Five for Fighting. Anyone reading this should listen to Superman and look at the lyrics. They're great.
  6. C

    Anyone culture MRSA

    I have cultured MRSA since I was diagnosed which was when I was 7. I haven't been able to get rid of it since. I'm put on bactrim quite a bit and I think I'm nearing resistance already. I'm 14. It honestly is probably the reason why I am in and out of the hospital. I have heard though that MRSA...
  7. C

    Anyone culture MRSA

    I have cultured MRSA since I was diagnosed which was when I was 7. I haven't been able to get rid of it since. I'm put on bactrim quite a bit and I think I'm nearing resistance already. I'm 14. It honestly is probably the reason why I am in and out of the hospital. I have heard though that MRSA...
  8. C

    Who are you in a nut shell

    My name is Victoria (you can call me Tori) I'm a girl I'm 14 I live in Texas I was dx (diagnosed) at 7 years old ~failure to thrive, pneumonia, digestive problems, and tummy aches I weigh around 105 lbs, and I'm 5'2 My PFT base line is 95-100% but they recently hit the 50s. I recently got...
  9. C

    Lung Function

    Tom is completely right! Just wanted to say that. For me, 60% would be bad. I'm 15 and my baseline is 90% but I go into the hospital at 70. I have seen the 50s and I have seen the 100s but 60% would still be bad for ME. But my friend who was stuck in the teens for a while before transplant would...
  10. C

    Lung Function

    Tom is completely right! Just wanted to say that. For me, 60% would be bad. I'm 15 and my baseline is 90% but I go into the hospital at 70. I have seen the 50s and I have seen the 100s but 60% would still be bad for ME. But my friend who was stuck in the teens for a while before transplant would...
  11. C

    Lung Function

    Tom is completely right! Just wanted to say that. For me, 60% would be bad. I'm 15 and my baseline is 90% but I go into the hospital at 70. I have seen the 50s and I have seen the 100s but 60% would still be bad for ME. But my friend who was stuck in the teens for a while before transplant would...
  12. C

    Not diagnosed or been to the doctor, just need advice

    I want to add that I do encourage to get that test. Jen, (I'm not sure if you were talking to me hahaha) but I said usually people with CF have green or yellow mucus. It's rarely clear if you're sick because (I might be wrong) green mucus means infection and yellow mucus means inflammation. But...
  13. C

    Not diagnosed or been to the doctor, just need advice

    I want to add that I do encourage to get that test. Jen, (I'm not sure if you were talking to me hahaha) but I said usually people with CF have green or yellow mucus. It's rarely clear if you're sick because (I might be wrong) green mucus means infection and yellow mucus means inflammation. But...
  14. C

    Not diagnosed or been to the doctor, just need advice

    I want to add that I do encourage to get that test. Jen, (I'm not sure if you were talking to me hahaha) but I said usually people with CF have green or yellow mucus. It's rarely clear if you're sick because (I might be wrong) green mucus means infection and yellow mucus means inflammation. But...
  15. C

    Not diagnosed or been to the doctor, just need advice

    Oh my gosh I'm so sorry for the reposts! My computer froze!
  16. C

    Not diagnosed or been to the doctor, just need advice

    Oh my gosh I'm so sorry for the reposts! My computer froze!
  17. C

    Not diagnosed or been to the doctor, just need advice

    Oh my gosh I'm so sorry for the reposts! My computer froze!
  18. C

    Not diagnosed or been to the doctor, just need advice

    If you want my opinion, I REALLY do not think you have CF. The swollen fingers have nothing to do with CF. If you are thinking that that is what clubbing is you are wrong. It is a good idea to get a sweat test done just to be safe though. I'm just positive that you don't have CF. People with CF...
  19. C

    Not diagnosed or been to the doctor, just need advice

    If you want my opinion, I REALLY do not think you have CF. The swollen fingers have nothing to do with CF. If you are thinking that that is what clubbing is you are wrong. It is a good idea to get a sweat test done just to be safe though. I'm just positive that you don't have CF. People with CF...
  20. C

    Not diagnosed or been to the doctor, just need advice

    If you want my opinion, I REALLY do not think you have CF. The swollen fingers have nothing to do with CF. If you are thinking that that is what clubbing is you are wrong. It is a good idea to get a sweat test done just to be safe though. I'm just positive that you don't have CF. People with CF...
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