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  1. D

    Clear Lungs, Fatty Liver

    My daughter is 19 has excellent lung function but is experiencing liver disease. She has cirrhosis with portal hypertension. She is on the ursidol which helps clear the sludge but that does not help the portal hypertension. As I have read in the other posts, yes there are side effects to certain...
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    Liz...TheLizardQueen

    Havent been on in a while and just wondering if anyone knows how Liz is? Doesnt seem like she has posted in awhile. Thanks.
  3. D

    Liz...TheLizardQueen

    Havent been on in a while and just wondering if anyone knows how Liz is? Doesnt seem like she has posted in awhile. Thanks.
  4. D

    Liz...TheLizardQueen

    Havent been on in a while and just wondering if anyone knows how Liz is? Doesnt seem like she has posted in awhile. Thanks.
  5. D

    Liz...TheLizardQueen

    Havent been on in a while and just wondering if anyone knows how Liz is? Doesnt seem like she has posted in awhile. Thanks.
  6. D

    Liz...TheLizardQueen

    Havent been on in a while and just wondering if anyone knows how Liz is? Doesnt seem like she has posted in awhile. Thanks.
  7. D

    Can a CF patient (baby) eat to much????

    Now that you mentioned that extra bottle in the middle of the night story, it reminded me of my youngest. When she was a toddler, she would wake up in the middle of the nights and ask for hotdogs and beans. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Debra<img...
  8. D

    Can a CF patient (baby) eat to much????

    Now that you mentioned that extra bottle in the middle of the night story, it reminded me of my youngest. When she was a toddler, she would wake up in the middle of the nights and ask for hotdogs and beans. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Debra<img...
  9. D

    Can a CF patient (baby) eat to much????

    Now that you mentioned that extra bottle in the middle of the night story, it reminded me of my youngest. When she was a toddler, she would wake up in the middle of the nights and ask for hotdogs and beans. <img src="i/expressions/face-icon-small-smile.gif" border="0"> Debra<img...
  10. D

    Can a CF patient (baby) eat to much????

    Hi -- Keep in mind that there is a huge correlation between eating and how much his body is actually digesting the food. Check his stools for grease. If there is alot of grease it means most of his food is just running out of him. He may need an increase in enzymes and a brand change in...
  11. D

    Can a CF patient (baby) eat to much????

    Hi -- Keep in mind that there is a huge correlation between eating and how much his body is actually digesting the food. Check his stools for grease. If there is alot of grease it means most of his food is just running out of him. He may need an increase in enzymes and a brand change in...
  12. D

    Can a CF patient (baby) eat to much????

    Hi -- Keep in mind that there is a huge correlation between eating and how much his body is actually digesting the food. Check his stools for grease. If there is alot of grease it means most of his food is just running out of him. He may need an increase in enzymes and a brand change in...
  13. D

    Disneyland Vacations

    We have been to Disney twice. You do not need to call Disney to make any special arrangements ahead of time. You do need a letter from your Dr. detailing the complications your child faces, heat issues, waiting in long lines leads to dehydration, frequent bathroom visits, medications, etc...
  14. D

    Disneyland Vacations

    We have been to Disney twice. You do not need to call Disney to make any special arrangements ahead of time. You do need a letter from your Dr. detailing the complications your child faces, heat issues, waiting in long lines leads to dehydration, frequent bathroom visits, medications, etc...
  15. D

    Disneyland Vacations

    We have been to Disney twice. You do not need to call Disney to make any special arrangements ahead of time. You do need a letter from your Dr. detailing the complications your child faces, heat issues, waiting in long lines leads to dehydration, frequent bathroom visits, medications, etc...
  16. D

    total healing from CF

    Wow -- it is so nice and inspiring to read everyones positive outlooks on life. I am Catholic and I so agree with what David has said. Here's more examples of potential miracles -- when my daughter was born I was told that she would probably not make it through the week. I brought a priest...
  17. D

    total healing from CF

    Wow -- it is so nice and inspiring to read everyones positive outlooks on life. I am Catholic and I so agree with what David has said. Here's more examples of potential miracles -- when my daughter was born I was told that she would probably not make it through the week. I brought a priest...
  18. D

    total healing from CF

    Wow -- it is so nice and inspiring to read everyones positive outlooks on life. I am Catholic and I so agree with what David has said. Here's more examples of potential miracles -- when my daughter was born I was told that she would probably not make it through the week. I brought a priest...
  19. D

    total healing from CF

    Wow -- it is so nice and inspiring to read everyones positive outlooks on life. I am Catholic and I so agree with what David has said. Here's more examples of potential miracles -- when my daughter was born I was told that she would probably not make it through the week. I brought a priest...
  20. D

    total healing from CF

    Wow -- it is so nice and inspiring to read everyones positive outlooks on life. I am Catholic and I so agree with what David has said. Here's more examples of potential miracles -- when my daughter was born I was told that she would probably not make it through the week. I brought a priest...
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