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  1. D

    HELP! My 10yr old is refusing to do airway clearance

    Pay her. I used to pay my daughter to eat. She used to rack up the money and I never actually paid her. Even if you have to pay her, it's better than her not doing it and she'll learn it's valuable to you, worth something! YOu won't have to pay her forever. Eventually she will get back on...
  2. D

    Can you just go up and buy Ataluren (PTC 124)

    did you ever buy the ataluren from selleck? it looks to me like the text of your post is different on the page than on my google search. That's why I ask. My email is djgoldhair@gmail.com
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    Diagnosed at age 50

    I have successfully raised two healthy CF daughters, now 23 and 21 and the best I can tell you is to go to a CF center at least 4 times a year to work with your doctor that you like and to choose a center that has the most patients - those doctors have seen the most.  
  4. D

    Diagnosed at age 50

    I have successfully raised two healthy CF daughters, now 23 and 21 and the best I can tell you is to go to a CF center at least 4 times a year to work with your doctor that you like and to choose a center that has the most patients - those doctors have seen the most.
  5. D

    Diagnosed at age 50

    I have successfully raised two healthy CF daughters, now 23 and 21 and the best I can tell you is to go to a CF center at least 4 times a year to work with your doctor that you like and to choose a center that has the most patients - those doctors have seen the most.
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