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My son is a 19 yo with CF. He got a feeding tube when he was 10. At the time, I was reluctant to do it. I gave him every supplement I could think of and kept hoping they would help. But his little body was working so hard to maintain the basics, that he just couldn't pull up out of it...

My son is a 19 yo with CF. He got a feeding tube when he was 10. At the time, I was reluctant to do it. I gave him every supplement I could think of and kept hoping they would help. But his little body was working so hard to maintain the basics, that he just couldn't pull up out of it...

<P>Heather--</P> <P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P> <P>I am a total rule follower. So, it took my son's WHOLE kindergarten year-resulting in four...

<P>Heather--</P> <P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P> <P>I am a total rule follower. So, it took my son'sWHOLE kindergarten year-resulting in four...

<P><BR>Heather--</P> <P>I know exactly how you feel. It is hard to make someone understand that CF demands different rules. It is also hard to deal with someone who is unwilling to cooperate. </P> <P>I am a total rule follower. So, it took my son'sWHOLE kindergarten year-resulting in four...

Jeana, We live close to 4 hours away from our CF center, so I understand how you feel about the inconvenience of being away from family. We always had to stay several days, then they let us go home and I took care of Brady. During one of our stays for IV antibiotic I asked why we had to stay...

Jeana, We live close to 4 hours away from our CF center, so I understand how you feel about the inconvenience of being away from family. We always had to stay several days, then they let us go home and I took care of Brady. During one of our stays for IV antibiotic I asked why we had to stay...

Jeana, <br />We live close to 4 hours away from our CF center, so I understand how you feel about the inconvenience of being away from family. We always had to stay several days, then they let us go home and I took care of Brady. During one of our stays for IV antibiotic I asked why we had to...

<P>I think everyone with CF has a different disease process that they deal with.  What does not affect one person, may be very harmful to another person.  That being said, my son has CF.  He has spent nearly every summer at the lake.  His sister (non-CF) had him out there teaching him how...

<P>I think everyone with CF has a different disease process that they deal with. What does not affect one person,may be very harmful to another person. That being said, my son has CF. He hasspent nearly every summerat the lake. His sister (non-CF)had him out there teaching him how toknee board...

<P><BR>I think everyone with CF has a different disease process that they deal with. What does not affect one person,may be very harmful to another person. That being said, my son has CF. He hasspent nearly every summerat the lake. His sister (non-CF)had him out there teaching him how toknee...

<P>Dolline,</P> <P>My son Brady is 18 with CF.  He cultured pseudomonas several years ago after a wonderful CF visit.  It surprised all of us, including his doctor, because the kid showed no symptoms at all.  I remember being absolutely devastated and scared out of my mind.  But after a round of...

<P>Dolline,</P> <P>My son Brady is 18 with CF. He cultured pseudomonas several years ago after a wonderful CF visit. It surprised all of us, including his doctor, because the kid showed no symptoms at all.I remember being absolutely devastated and scared out of my mind. But after a round of...

<P><BR>Dolline,</P> <P>My son Brady is 18 with CF. He cultured pseudomonas several years ago after a wonderful CF visit. It surprised all of us, including his doctor, because the kid showed no symptoms at all.I remember being absolutely devastated and scared out of my mind. But after a round of...