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Hello. I've had 2 phone consultations with Dr Zannos Grekos. He has had a checkered past and has lost his medical license after performing non-FDA approved procedures in Florida. Currently does his work in the DR. But he seems sincere. I've also talked to Angelo who's had the treatment twice...

Anyone culturing Candida albicans ? what does that do? How harmful is that?

Because I'm under medicaid, I do not qualify for the live to thrive program.

Hey Jason, I know how you feel. My insurance just canceled my boost. Sigh. For situations like this I always try to stock up. I just exaggerate how much I'm taking. I tell my doc: I'm doing albuterol 4x/day, not 3. I need 8 caps a meal, 5 meals a day. Stuff like that. I try to have 2-3 months...

Ray-- My research includes direct communcation with a clinic in Georgia, reading countless scientific papers (my background is in biochemistry and biology), speaking with a researcher in Washington who is doing work with phages on an academic level, and a physician treating patients with it :)...

I'm looking to temporarily relocate to help build a new community of people...take advantage of the crisis and reclaim the city before the condos start popping up and we go back to the old ways of doing things. Currently in Portland OR. But I'm wondering if anyone with CF is there. I hear the...

Hello all! I'm happy to report that I am currently on phage therapy, and WOW I couldn't have imagined better results. I'm getting my PFT's chekced in a few days to see if my lung function goes up; even if it doesn't, I gotta say, I'm quite happy with the amazing increase in my energy and...

I've been fired twice from professional jobs. The circumstances were so identical it was undoubtedly discrimination.

Hello all, We are friends and roommates of Lief Bamberg, cystic fibrosis patient in Portland, OR. He was recently hospitalized and didn't respond well to antibiotics. We've started a fundraiser for him to get this treatment. You can find the link here! Please spread the word...

It's better than bodybuilding. I'm doing starting strength. I've gained 15 lbs in 3 months. I've had a history of fitness my whole life. I'm now 6', 160 lbs. ALl indications is that this progress will continue. And my lung function has stabalized for the last year as well. Seriously...

That's awesome bookworm. I'll look into that. WHen I contacted CFF, they said they were unaware of any phage studies being conducted. Thanks for the tip.

Hello all. I've been doing a lot of research on bactiophage therapy. Check out these links if you are unfamiliar. http://www.phmd.pl/fulltxthtml.php?ICID=495359#ref2 http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3278648/ http://www.ncbi.nlm.nih.gov/pubmed/18541414...

I lived in Texas for 15 years. I went to Ft Worth, Austin, and Dallas clinics. Dallas clinics are pretty terrible. Austin is way better. I was too young to remember Ft Worth. But insurance is a nightmare in Texas. If you're on medicaid, their coverage is pretty slim. I moved to Portland, and...

I play bluegrass, do a lot of strumming with modern songs, and am I'm currently learning clawhammer on the banjo. I think my main focus on the trombone will be classical and jazz. And to leecee, I wouldn't worry about the reed. If she likes the clarinet, she should play it. If you're worried...

I am also looking into it. My doc's are kinda resistant to it. But I think it will be very effective! I say keep up the search.

I've played banjo for a while. But I recently started playing trombone. I have to say, the trombone REALLY helps with the lungs! String instruments are a lot of fun, but wind instruments will open your lungs, keep them clear, and give you a great incentive to do breathing exercises. I would say...

Hi. I'm 27 as well. I've dated several girls, (maybe too many ;) I also have this theory that the relationships have failed in one respect or another because of my CF. At times I was depressed and they couldn't handle it, other times it seemed like they were depressed because of my low lung...

Here is some info they sent me when I registered as a patient in their clinic. Bacteriophage Therapy for Patients Across the Globe Frequently Asked Questions Is phage therapy covered by my insurance? It depends on your insurance company. Many insurance companies -- if...

I heard an NPR broadcasting of bacteriophages--viruses that attack bacteria cells--and I had an aha moment. I was wondering if it could be used for therapies, and as it turned out, later in the broadcast they discussed how this therapy is prevalent in Eastern Europe, specifically the Republic of...

I was on 3 IVs. I had to sleep in shifts with my gf. It was Vanco (8 hours), Tobra (1/day), and Aztreonam (cayston IV) also every 8 hours. So it was fairly hellacious. They wouldn't send me a pump so I demanded to have all 3 with intermates. Near the end my PICC was getting clogged so I had to...