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My 11 year old step daughter w/cf has had trouble sleeping. Her Dr. ordered melatonin for her during one of her hospital stays and we continued it at home. She would lay awake all night sometimes. The melatonin along with going to bed and getting up at the same time works for her most of the...

My 11 year old step-daughter HATES her treatments too! I am sure I would too! Just hang in there...remember that you are doing it for his own good! How about playing cards with him? UNO, go fish, rummy? Maybe even teach him to play poker and use pennies for bets!! Good Luck, we get frustrated too!

Thank you all so much!! It helps so much to have all of your feed back! She is scheduled for an endoscopy today and hopefully will complete her 2 week stay this Thursday!!

What about sports? Was it still ok for you to play sports? With her spleen enlarged we are wondering if it will be ok for her to play basketball and softball.

My 10 year old step-daughter (who was diagnosed with cf at 18months) had an enlarged spleen that was noticed on her chest x-ray, which led to and ultra-sound and blood work. They have told us that she now has cf related liver damage. They have started her on a medicine to thin her bile. This is...

We use Vanderbuilt Children's hospital in Nashville, Tn and receive the best of care. All treatments and meds are given in a timely manner. If you are not recieving good care at your hospital you should report it. Late meds on occasion because of an emergency/situation with another patient is...

Itoo am dating a man who's daughter age 9 has CF...I knew a little about cf because I have been an LPN for 12 years but nothing could have prepared me for help to parent a child with CF. He has joint custody so she is with us half the time. learn as much as you can about his treatments and meds...

Itoo am dating a man who's daughter age 9 has CF...I knew a little about cf because I have been an LPN for 12 years but nothing could have prepared me for help to parent a child with CF. He has joint custody so she is with us half the time. learn as much as you can about his treatments and meds...

Thank you so much! I know that we can never be too careful!

Thank you so much! I know that we can never be too careful!

Ok if a CF child's great-grand mother (whom she has been around daily) has been diaognosed with MRSA in her sputum. Is it ok for AG to be around Granny? I think no way but her Dr's at Vandy say it is ok!?!? AG has had MRSA before....I am still in the learing process with all of this so THANKS...

Ok if a CF child's great-grand mother (whom she has been around daily) has been diaognosed with MRSA in her sputum. Is it ok for AG to be around Granny? I think no way but her Dr's at Vandy say it is ok!?!? AG has had MRSA before....I am still in the learing process with all of this so THANKS...

I have no advice really either but I will keep you and your son in my prayers! Stay strong in your fight for you son's well-being!!

I have no advice really either but I will keep you and your son in my prayers! Stay strong in your fight for you son's well-being!!

I have no advice really either but I will keep you and your son in my prayers! Stay strong in your fight for you son's well-being!!

We are dealing w/ the flatulance and poop also but my 2 girls w/o CF are pretty stinky on their own so I think this has helped her because they try to guess who was in the bathroom last! She is with us 1/2 of the time so I am catching on fast! The idea about going to the Dr. visits with her is...

We are dealing w/ the flatulance and poop also but my 2 girls w/o CF are pretty stinky on their own so I think this has helped her because they try to guess who was in the bathroom last! She is with us 1/2 of the time so I am catching on fast! The idea about going to the Dr. visits with her is...

We are dealing w/ the flatulance and poop also but my 2 girls w/o CF are pretty stinky on their own so I think this has helped her because they try to guess who was in the bathroom last! She is with us 1/2 of the time so I am catching on fast! The idea about going to the Dr. visits with her is...

Thank you for all of the advice!! Please keep it coming! I love to read how each of you deal with CF in your daily lives...Your strength and courage is amazing and inspires me!

Thank you for all of the advice!! Please keep it coming! I love to read how each of you deal with CF in your daily lives...Your strength and courage is amazing and inspires me!