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Curious how the process is going for you, cfgirl83... You asked about the listing process (which is all I can share as I haven't been transplanted yet). I went through a couple day's worth of outpatient tests to be evaluated. Then went / and have gone to quarterly "check up" appointments to...

Curious how the process is going for you, cfgirl83... You asked about the listing process (which is all I can share as I haven't been transplanted yet). I went through a couple day's worth of outpatient tests to be evaluated. Then went / and have gone to quarterly "check up" appointments to...

Curious how the process is going for you, cfgirl83... <br /> <br />You asked about the listing process (which is all I can share as I haven't been transplanted yet). I went through a couple day's worth of outpatient tests to be evaluated. Then went / and have gone to quarterly "check up"...

Thank you both for your words. It's helpful to hear your stories. "at my last tx educational seminar (I'm pre-tx) everyone in the crowd groaned when the pharmacist said we would be on it forever (I cheered quietly)" That cracked me up. I was just admitted and my doc said he's going to put me...

Thank you both for your words. It's helpful to hear your stories. "at my last tx educational seminar (I'm pre-tx) everyone in the crowd groaned when the pharmacist said we would be on it forever (I cheered quietly)" That cracked me up. I was just admitted and my doc said he's going to put me...

Thank you both for your words. It's helpful to hear your stories. <br /> <br />"at my last tx educational seminar (I'm pre-tx) everyone in the crowd groaned when the pharmacist said we would be on it forever (I cheered quietly)" <br /> <br />That cracked me up. I was just admitted and my doc...

Laura and mag6125 - Sorry I didn't explain fully in my original post but I added an edit to it. I'm pretty informed about transplants as I was evaluated in 2002 and have gone to quarterly pre-xplant appts at my center as well as the educational seminars they put on / support groups since then...

Laura and mag6125 - Sorry I didn't explain fully in my original post but I added an edit to it. I'm pretty informed about transplants as I was evaluated in 2002 and have gone to quarterly pre-xplant appts at my center as well as the educational seminars they put on / support groups since then...

Laura and mag6125 - Sorry I didn't explain fully in my original post but I added an edit to it. I'm pretty informed about transplants as I was evaluated in 2002 and have gone to quarterly pre-xplant appts at my center as well as the educational seminars they put on / support groups since then...

I hear you, Sunflower. Pretty much same story for me 12+ years ago. I resisted IV's as I watched my PFT's go from 80's to 70's to 60's to 50's. I felt I didn't have enough symptoms to warrant them. I felt fine! I finally was willing and feel they slowed down the decline. I'm now, and have been...

I hear you, Sunflower. Pretty much same story for me 12+ years ago. I resisted IV's as I watched my PFT's go from 80's to 70's to 60's to 50's. I felt I didn't have enough symptoms to warrant them. I felt fine! I finally was willing and feel they slowed down the decline. I'm now, and have been...

I hear you, Sunflower. Pretty much same story for me 12+ years ago. I resisted IV's as I watched my PFT's go from 80's to 70's to 60's to 50's. I felt I didn't have enough symptoms to warrant them. I felt fine! <br /> <br />I finally was willing and feel they slowed down the decline. I'm now...

Thank you so much for your replies. Ldude - "My symptoms were not specifically lung related - it was more fatigue and just terrible quality of life." This is very helpful for me to hear. My CF doc continually points out that most patients have more lung-related symptoms upon admission. He...

Thank you so much for your replies. Ldude - "My symptoms were not specifically lung related - it was more fatigue and just terrible quality of life." This is very helpful for me to hear. My CF doc continually points out that most patients have more lung-related symptoms upon admission. He...

Thank you so much for your replies. <br /> <br />Ldude - "My symptoms were not specifically lung related - it was more fatigue and just terrible quality of life." This is very helpful for me to hear. My CF doc continually points out that most patients have more lung-related symptoms upon...

They keep telling me I'll likely get listed at one these future quarterly appointments...<div><br></div><div>I've found I feel much better on prednisone and stay out of hospital longer. My CF doc wants to take me off it for fear of side effects (blood sugars, bone density, lowered immune...

They keep telling me I'll likely get listed at one these future quarterly appointments...<br>I've found I feel much better on prednisone and stay out of hospital longer. My CF doc wants to take me off it for fear of side effects (blood sugars, bone density, lowered immune system). He says it's...

They keep telling me I'll likely get listed at one these future quarterly appointments...<br>I've found I feel much better on prednisone and stay out of hospital longer. My CF doc wants to take me off it for fear of side effects (blood sugars, bone density, lowered immune system). He says it's...

I'm in that grey area of needing to be listed: Hospitalizations 3-5x/year, FEV1 25-30%, very limited in activities some weeks/months, do okay others. Oxygen with exercise and sleep. I continually adapt and get used to most of the limitations but I sometimes feel I'm in denial about how I've...

I'm in that grey area of needing to be listed: Hospitalizations 3-5x/year, FEV1 25-30%, very limited in activities some weeks/months, do okay others. Oxygen with exercise and sleep. I continually adapt and get used to most of the limitations but I sometimes feel I'm in denial about how I've...