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My daughter is 18, and been told its time to meet the transplant team. Prior to 2/15/15; her FEV1 were stable at 43%, on continous IV Imipenum for M Abscessus, and a daily cocktail of antibiotics for her NTM (m abscessus), room air during the day, and 1 liter of 02 at night. She caught the flu...

My daughter graduates next month, and plans on visiting close friends by herself by train headed to Florida. Just curious to find any tips you may have as far as she's traveling with CF and needs her oxygen machine at night.

My daughter is 16 with atypical mycobacterium abscessus. We recently have been told by our doctors, they no longer are not sure how to treat due to her multiple drug allergies, drug resistance, and the hearing loss she's acquired from multiples antibiotics. They haven't given up, but yet just...

<P>Trying to find out from everyone, who has a gtube, if they are experiencing persistent nausea & vomitting after night feeds.</P> <P>My daughter is 14 & had the tube for about 5 years, but having worsening nausea & vomitting so much she's too sick for school.</P> <P>We tried different...