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  1. S

    Kalydeco and Class IV Mutations

    My grandson has delta 508 and r347p. He is 4 and is pancreatic sufficient. I would be very interested in knowing how your health has been over the years. Thanks to you and I appreciate any feedback.
  2. S

    Insights from current 661 or 809 trials

    My grandson has the same mutations as your child. He is 4. I would be very interested to know how your child is doing and what treatments you are doing. The only thing he does is the vest. He is PS. Thanks so much. Do you know if his mutations qualify for the new drug?
  3. S

    Insights from current 661 or 809 trials

    My grandson has the same mutations as your child. He is 4. I would be very interested to know how your child is doing and what treatments you are doing. The only thing he does is the vest. He is PS. Thanks so much. Do you know if his mutations qualify for the new drug?
  4. S

    Rare Mutation - Help

    How do you find out information about a specific mutation. I am interested in finding info on r347p. Thanks, Sandy
  5. S

    Rare Mutation - Help

    How do you find out information about a specific mutation. I am interested in finding info on r347p. Thanks, Sandy
  6. S

    770 approved!!!!!!!!!

    What are the other gating mutations? Thanks,
  7. S

    770 approved!!!!!!!!!

    What are the other gating mutations? Thanks,
  8. S

    Anyone with mutation V562L?

    I am sorry I do not know about your mutation. However, I am very interested in finding out how your husband is doing. My grandson, who is almost 4, has the exact mutations that your husband has. That is a very rare combination with only about 30-40 people in the U.S. who have that combo...
  9. S

    Anyone with mutation V562L?

    I am sorry I do not know about your mutation. However, I am very interested in finding out how your husband is doing. My grandson, who is almost 4, has the exact mutations that your husband has. That is a very rare combination with only about 30-40 people in the U.S. who have that combo...
  10. S

    Anyone with mutation V562L?

    I am sorry I do not know about your mutation. However, I am very interested in finding out how your husband is doing. My grandson, who is almost 4, has the exact mutations that your husband has. That is a very rare combination with only about 30-40 people in the U.S. who have that combo...
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