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I just read on pipers blog that she got call #4

I was wondering if anyone uses Home and Hospital school full time we are only on H&H care when out of school sick for a week or two but are looking into full time care, I just dont want to send my daughter back to school it is making her sick, i'll give my reasons for saying this <the kids...

I'm planning a vacation to Memphis to see graceland this summer and wanted to know if anyone has been there if so what else do you suggest we see.

this just is not right to me , my daughter is always on isolation when in the hospital but now she is in the ICU with a little roommate and both are on isolation, I see a problem with this what do you all think.

My daughter seems to go into the hospital about every 3 and would like a laptop computer to take with her to play games, e-mail and do school work on ,my problem is I dont know much about laptops and was looking for some suggestion for a 15 year old . Thanks.

can anyone tell me how low there pft's are and how long they've been that low.

I'm having a problem with the kids smoking in the bathrooms at my teens high school to the point the halls and some classrooms smell like cigarette smoke,my school can't seem to get a handle on this problem, can you tell me what your schools do to stop this problem. I know it makes my child sick...

My 14 year old will need to be on oxygen full time very soon but refuses to wear it out in public , is there anything I can do to make this easier for her or to help her get through this next step in her life. thank you

I was wondering if anybody besides my daughter gets fevers only at night when on IV's, right now she has 102.8 fever but in the day she's fine no fever, and her o2 levels are lower then normal for her.

My child uses nutren 2.0 for tube feeding at night and I wanted to see if I could get her to drink extra during the day and was wondering has anyone tried the flavor packets that nestle has.

I was told about a t-shirts that say CF SUCKS on it but I am having problems finding them on the internet, does anyone know where I can get them ?

I was just looking up centers in Maryland and saw National Institutes of Health listed and I know there are several people on this board from maryland and was wondering if anyone go there, if so that do you think of this center /

I wanted to know if everyone throws away there opened hypertonic saline after 24 hours or do you continue to use it till it's gone, My directions say to draw 3ml of 10% and 2ml of 3% then throw away the rest , that seems to be a lot wasted each time.

I am having a problem with my pre-teens treatments , it seems like all we do is treatments all day long and have time for nothing else to the point she fights not to do them and could care less if she gets sick or not ( just wants to be normal she says ) we do treatments in the am and pm for...