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  1. L

    how many times do you take pulmozyme

    ok so recently my doctors have told me pulmozyme is now once a day after 20 years.....What changed? is anyone else dealing with this?
  2. L

    any one know a good docture in AZ

    Hey everyone I am considering moving from cincinnati to Arizona does any one know if there is a good CF center there or a city close to there
  3. L

    What song do you relate your CF fight to

    Hey all I have always wonderd of there are other people out there who relate a song to there battle with CF for me its Down with the sickness by Disturbed and one else Do this
  4. L

    has anyone else gotten mixed up while in the hospital

    Ok this is gonna sound strange but has anyone else gotten mixed up with another patient while admitted to the hoapital
  5. L

    Ideas for venus

    Hey everyone I am getting ready to hold a benifet for CF in CINCINNATI OHIO we will have live music drink specials and if we can get some decent raffle prizes that still working on all the details but I do know for a fact that if you have CF or are a parent with a child with CF you get in for free
  6. L

    Does anyone else freak out when things get tough

    OK everyone I want to know at points in your life just before we get sick do anyone else stress level ever make them do stupid things that you later regrete but you cant change no matter how much you want to
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