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Hi yes done that and where my son is being seen is our local one, I would prefer my son not to have CF but if he has I want to know properly and get the Diagnosis. I just don't understand from what I am reading that people have a Diagnosis with one gene yet my son is'nt. I just don't know how to...

Hi yes done that and where my son is being seen is our local one, I would prefer my son not to have CF but if he has I want to know properly and get the Diagnosis. I just don't understand from what I am reading that people have a Diagnosis with one gene yet my son is'nt. I just don't know how to...

Hi Bill am in the UK so things work different here but I am not going to give up untill I have the answers that we need, what I mean by moving hospital and making things worse is that the other hospital may be worse than the one he is at then what do I do? Thanks Becca's mom, no my son not had a...

Hi Bill am in the UK so things work different here but I am not going to give up untill I have the answers that we need, what I mean by moving hospital and making things worse is that the other hospital may be worse than the one he is at then what do I do? Thanks Becca's mom, no my son not had a...

How do I ask for a CF centre as far as am aware were seen by a CF consultant but if am honest he does not seem the best I have been wondering if to move my son hospital but don't want it to affect him for the worse

How do I ask for a CF centre as far as am aware were seen by a CF consultant but if am honest he does not seem the best I have been wondering if to move my son hospital but don't want it to affect him for the worse

Yh the physio is helping loads and with everything else hes doing a lot better <img src="i/expressions/face-icon-small-smile.gif" border="0"> I did ask how many but all they said was they did the most common first and now they are doing the extended version so I asked again how many as in a...

Yh the physio is helping loads and with everything else hes doing a lot better <img src="i/expressions/face-icon-small-smile.gif" border="0"> I did ask how many but all they said was they did the most common first and now they are doing the extended version so I asked again how many as in a...

<span class="postbody">Hi all my son was addmitted for 1st lot of 2wk iv's and a broncHe has boarderline sweat tests and 1gene found upto now if there is even another. hes been treated for asthma since a baby.The 2 weeks went well got a lot of stuff out started nebs and physio which is helping...

<span class="postbody">Hi all my son was addmitted for 1st lot of 2wk iv's and a broncHe has boarderline sweat tests and 1gene found upto now if there is even another. hes been treated for asthma since a baby.The 2 weeks went well got a lot of stuff out started nebs and physio which is helping...

I am in the UK the doctor is a CF doctor but the hospital is a childrens hospital for everything, they are planning on doing tests still and nebs and physio which I found out today I have to keep asking as no one seems to explain to me I will see doctor on thursday after bronc tests and see if...

I am in the UK the doctor is a CF doctor but the hospital is a childrens hospital for everything, they are planning on doing tests still and nebs and physio which I found out today I have to keep asking as no one seems to explain to me I will see doctor on thursday after bronc tests and see if...

thank you I will mention all the advice given, I am hoping to see someone soon and going to ask for as much info as possible. yes he has only just been dianosed But the thing is is that Dr wants him on treatment yet has said he don't want to record an offical dianosis as its a big label to carry...

thank you I will mention all the advice given, I am hoping to see someone soon and going to ask for as much info as possible. yes he has only just been dianosed But the thing is is that Dr wants him on treatment yet has said he don't want to record an offical dianosis as its a big label to carry...

hi, thank you for the replies, we got a call a few hours ago and were here now with my lo with his cream on still not been told water to expect and feeling very anxious my son on the other hand has settled in well <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have all these...

hi, thank you for the replies, we got a call a few hours ago and were here now with my lo with his cream on still not been told water to expect and feeling very anxious my son on the other hand has settled in well <img src="i/expressions/face-icon-small-smile.gif" border="0"> I have all these...

<span class="postbody">Background- My 9year old son has always had bad asthma, hes always brought up lots of mucas but no other health issues and has grown lovely and tall even stocky....He was 8 in December and got Pneumonia so they began the testing for CF he has the chest syptoms, 3...

<span class="postbody">Background- My 9year old son has always had bad asthma, hes always brought up lots of mucas but no other health issues and has grown lovely and tall even stocky....He was 8 in December and got Pneumonia so they began the testing for CF he has the chest syptoms, 3...

Ok thank you for that, I am there on Thursday so will see what they say, last time he said he did'nt want to diagnose 'yet' and that was before they knew he had Delta F508 just its all so confusing I don't know what to make of it.

Ok thank you for that, I am there on Thursday so will see what they say, last time he said he did'nt want to diagnose 'yet' and that was before they knew he had Delta F508 just its all so confusing I don't know what to make of it.