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Thanks guys for your input! It's great to hear of other people doing so well. It's not something I dwell on I was just curious in general. I am a very positive person & to be honest never really think about my CF & I guess I'm lucky I don't really have to yet . To aboveallislove I am double...

Hey guys hope you're all doing good! I have a question that's been on my mind lately about natural deterioration in CF. Excuse the seriousness/slight morbidity but I am curious. I am 24 years old, I am very compliant with treatments, I try to run 5 days a week and my FEV1 is stable & always high...

Thanks you guys I appreciate your input! I am still in 2 minds however I am finished orals on Thurs so have follow up & pfts then. If doc recommends a hospital stay I may do it! Thanks again :)

Hey all, I am just wondering your experience with home IV's vs. hospital IV's. I have been on a couple of courses of home IV's the last few months and they just don't seem to be working so well anymore. I am still pretty symptomatic by the time I finish them, especially with pleurisy pain that...

I usually take cipro for 2 weeks, & sometimes even the 2 weeks doesn't cut it. Then I know it's IV time. Everyone responds to antibiotics differently but I usually wouldn't see an improvement after only a week on orals so I would continue to take them. But your daughter knows how she feels...

I'm not sure if this answers your question but I know for neilmed sinus rinse it says to use at least an hour before bed. Hopefully that might improve the irritation you're experiencing :)

Gosh thanks everyone for your replies! I am so sorry to hear a lot of you experience it too. Just one of the joys of CF huh? I am being referred to rheumatologist. Hopefully I'll see him soon and he may be able to give me something for some relief. But for the moment the heat suggestion...

Hey guys hope everyone's doing well! Just wanted to ask you guys about being in constant pain. I've got joint pain all the time. Lately one of my knees has been particularly bad, it's become permanently painful. I know this can be a cf thing, but since it's become consistent, every day, at least...

Hey guys, I've posted here a couple of times. I'm a CF'r/also singer... strange combination I know! I live in Ireland & I just wanted to share with you that I'm in the Irish Cystic Fibrosis magazine called Spectrum! I was contacted because of my singing and I was asked to write a little bit...

Thank you guys for your replies! I do agree with the suggestion of getting a lot of rest. I can't help but rest while on IV's anyhow so now I won't feel so bad :) And the hobby suggestion is great thank you. I love to write songs so I hope to get a nice few written in the next couple weeks...

Thank you! I'm gonna do what I can and try avoid feeling sorry for myself and pushing myself to do a bit of something everyday. I plan on having a very productive fortnight :) & if I'm honest I've been putting off organising drawers for months. I think it's finally time :) Thank you.

Hey guys. I'm starting a 2 week course of home IV's this Monday. Like most of you I'm sure, I am totally 'zombified' while I'm on them and I hate it :( there's probably not a lot that can be done but I'm just wondering if any of you have any tips for keeping up your energy levels while on them...

Gosh I can't thank you all enough for your support it means the world to me! TreasureGoddess: I'm delighted you guys like it thank you for your support! JustDucky: Thank you I hope you're right! RunningMan: Thank you for your encouragement, if I could inspire some of you guys hopefully it...

Thank you all so much! I'm so happy you guys enjoyed it! Twistofchaos: Thank you I hope I can pursue a career in music too. It's just so challenging and with meds it makes it so hard to travel, but one step at a time. Music is what I live for so I I'll find a way :) I've a couple tracks...

Hello my name is Emma. I'm from Ireland, I've posted a couple of posts on here the last while. I've noticed a lot of posts being focused on the bad stuff of CF. Which I completely get, I sure do get my days where I am down and worried about what this illness can do to us, but I wanted to show...

Sorry to hear the trouble you're experiencing with this antibiotic :( I experience the exact same symptoms as you've described when I'm on Meropenum IV. But like you said, my doctor feels the pros outweigh the cons. One of the CF nurses suggested to me to help with the nausea, to eat something...

Hello! I'm a 21 year old girl from Ireland and my FEV1 is around 102%. Which is the best it's been in a couple of years so I'm very happy! Sounds like you're doing well too, glad to hear it :)

Hoya sue, that doesn't sound too wonderful, if I were you I'd call doc just to make sure. May just b coincidence but if not the ivs could b doing more damage than good. Definitely worth getting checked just in case. Hope you're feeling better soon!

Hoya sue, that doesn't sound too wonderful, if I were you I'd call doc just to make sure. May just b coincidence but if not the ivs could b doing more damage than good. Definitely worth getting checked just in case. Hope you're feeling better soon!

thnx Joni <img src="i/expressions/face-icon-small-smile.gif" border="0"> have bn eating a slice of toast before morning cipro so the nausea has calmed down <img src="i/expressions/face-icon-small-smile.gif" border="0"> just curious as to what u have with applesauce? Do u have it with anything or...