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Hey guys hope you're all doing good! I have a question that's been on my mind lately about natural deterioration in CF. Excuse the seriousness/slight morbidity but I am curious. I am 24 years old, I am very compliant with treatments, I try to run 5 days a week and my FEV1 is stable & always high...

Hey all, I am just wondering your experience with home IV's vs. hospital IV's. I have been on a couple of courses of home IV's the last few months and they just don't seem to be working so well anymore. I am still pretty symptomatic by the time I finish them, especially with pleurisy pain that...

Hey guys hope everyone's doing well! Just wanted to ask you guys about being in constant pain. I've got joint pain all the time. Lately one of my knees has been particularly bad, it's become permanently painful. I know this can be a cf thing, but since it's become consistent, every day, at least...

Hey guys, I've posted here a couple of times. I'm a CF'r/also singer... strange combination I know! I live in Ireland & I just wanted to share with you that I'm in the Irish Cystic Fibrosis magazine called Spectrum! I was contacted because of my singing and I was asked to write a little bit...

Hey guys. I'm starting a 2 week course of home IV's this Monday. Like most of you I'm sure, I am totally 'zombified' while I'm on them and I hate it :( there's probably not a lot that can be done but I'm just wondering if any of you have any tips for keeping up your energy levels while on them...

Hello my name is Emma. I'm from Ireland, I've posted a couple of posts on here the last while. I've noticed a lot of posts being focused on the bad stuff of CF. Which I completely get, I sure do get my days where I am down and worried about what this illness can do to us, but I wanted to show...

I'm on my second wk of 2 wk course of IV's, (meropenem & ciproxin) every couple days im experiencing nausea after my dose of cipro, and bubbly tummy usually followed by the runs <img src="i/expressions/face-icon-small-sad.gif" border="0"> just wondering have any of u ways of managing the nausea...

Just wondering if anyone drinks alcohol while on their course of IV's? It's my best friends 21st bday this wknd and typical me ended up on IV's for her party <img src="i/expressions/face-icon-small-sad.gif" border="0"> she understands my situation and if I can't drink I can't. Just wondering if...

Hi I am new to this forum as I'm in a bit of a pickle, I had to join to seek all of your expert opinions/advice. Basically where I'm at with our CF friend at the moment, I'm pretty well, only have a port because veins are so bad, require IV's 2-3 times annually, FEV1 around 104%. Anyhow I...