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<br><div> Dear friends,</div><div><br></div><div> I want to thank everyone on this site who helped me throughout the years, I will not list names as im afraid to miss someone. My cf has progressed now to a terminal stage  and its a matter of time before I come to terms with this disease which...

2 weeks ago i started mild hemoptysis which never subsided... upon hospital admission i was dx with a blood clot or wat is generally known as pulmonary embolism. Potential or common treatment is heparin but due to my case and fear of masive hemoptysis the treatment wasnt possible by any means...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.prlog.org/10329509-meveol-by-alaxia-is-granted-orphan-drug-status-for-the-treatment-of-cystic-fibrosis-in-eu.html ">http://www.prlog.org/10329509-...c-fibrosis-in-eu.html </a> That is the most promising article i have read since...

A very inspirational song that relates to death with terminal ilnness. Freddie Mercury sang this song with Queen one year before his death from HIV AIDs. The lyrics are moving and listening to it give me the chills as I relate to it 100%.

Hey, Anyone hit by it and watching all the games like me ? Congratulians for the U.S. team for reaching the 2nd round <img src="i/expressions/face-icon-small-smile.gif" border="0">

Does anyone have extra tobi ? PM me. dont reply here plz.

Hello, does anyone have xtra CF vitamins ( vitamax, adek or cf source ) and ready to give away ? Regards Rami

i suggested them for my doc especially tranexamic acid but he said they would do harm more than benefit. any feedback and dont tell me abt vit K lol its not doin the trick.

all my hemoptysis episodes are happening in the morning right after i wake up why??? I just had another one today. I'll keep you posted.

Does this mean the right or left lung is severely damaged and does sleeping on a a damaged lung induce hemoptysis?

I'm really unhappy with the megace with all its side effects and it has done me no favours till now after 4 days. I'm considering switching to Marinol as an appetite stimulant any feedbacks. Thank you

I usually dont take pulmozyme on regular basis since it wasnt available here. Now since it is now available in lebanon, I ve been using it regularly since 3 weeks and i can tell it has alot of side effects. First concern, i developed massive hemoptysis many times before it so the doctor ruled...

After my embolization i feel that i lost my breath !!! Does embolization reduce your fevs?

I want to thank all who prayed and thought of me during my critical hospital stay. It was the scariest experience for me so far considering the amount of blood i lost. My hemoptysis continued even after the embolization and required frequend blood transfusions.However, suddenly it stopped (...

On 27, 4, 2008 I asked for 4giveness. it was from the heart and Jesus directly listened. I cried rivers though i never cry and then felt really happy. He erased all my sins. I dont care about anything in this world anymore even CF. It was a great experience and wanted to share it with you. Now...

Ok I noticed that hemoptysis and erections and adek are all interrelated at least in my case. As I develop hemoptysis I stop my adek vitamins bcz they aggrevate it or cause it dont know, but then my erections suffer and get weak. I go back on adek and regain my sexual powers , but then have to...

I noticed when I eat procesed cheese I start coughing more sputum, what's the relation ?

Does anyone know where can i get a filter for Pari Turbo Boy N nebulizer?

How often do you hear this phrase? How often do you hear people telling you that you look in good shape and ask you to do things you cat do actuall, and when you dont do it they think you are depressed or lacking ambition or motivation or even letting yourself "defeated"? I'm sick of this, what...

Does anyone has extra adek to ship inside the States? Regards