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    Pulmozyme in infant

    My grand daughter was diagnoised at 3 days. She began Albuterol immediately and clapping. She also began taking Creon and med for reflux. At a few months old she got a nasty bacteria and began some steroid treatments she does the Albuterol, Budnesoine (spelling) and just finished an antibiotic...
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    Grandmother of a CF infant, would love to talk to parents/grandparents

    My granddaughter is 8 months old, she was diagnoised at 3 days old, when we noticed her forehead was extremely salty. Mommy has an extensive history of CF on her side of the family, but we don't know of any on ours. Anyway we have struggled with weight gain. She if 15.16# which the doctors say...
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    Thinking about death & Fear

    Oh my, it's so hard not to. My granddaughter is 8 months old and has double Delta 58. She was diagnosed at 3 days old. I thought about it more than I should. I had a neighbor who buried her CF husband then daughter and within the next year she lost her son with CF, one son without CF in a car...
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    2 Year old daughter recently diagnosed with CF

    Hi, my granddaughter is 8 months old, she was diagnoised at 3 days. It was the weirdest thing. We brought her home and I was hold her and kissed her head and noticed her forehead tasted VERY salty. I checked it again later and found the same thing. I had my son call her doctor and they had them...
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