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CF tattoos
I found a facebook page that has tons of pics of CF tats. It is where I got my idea to get mine for my son. http://www.facebook.com/#!/CFTattoos I love mine, it's simple but what I wanted. Good luck! -
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D508/R117 mutations
My son also has F508 and R117H. His doctor has always said that he will most likely be "mild" his whole life. In fact he has gone 9 years before he started to show "signs" of having CF. Within this past year he got (and got rid of) Pa, x-ray showed damage, and his lung functions went down...but...- Mills7
- Post #20
- Forum: CFTR Modulation and Gene Therapy Talk
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Maybe CF, Maybe not?
WildCherry I too am more or less a lurker but I wanted to share our experience. My son was dx at birth from the newborn screening. DeltaF508 and R117H. He had 3 sweat test done, all coming back 30 (borderline) at St Chris (also has a CF cert center). He was treated with meds for resp and...- Mills7
- Post #27
- Forum: Newly Diagnosed