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How to get in touch with these members who are from India. It will be nice to interact with people from same country as we know the limitation of Medical facility available here.

Mallika, I dont my reply has reached you or not as i m not able to track you so posting it here too :) Hi Mallika, I can totally related with your state of mind. My daughter is 3.8 yrs old now and she was diagnosed last year in may when she was 2.3 year old. Since 1.5 years we are battling...

Hi Mallika, Just checked your PM and replied to it. Please check it. Yes i too agree that CF is a very different disease in Indian scenarios and limited treatment options available and lack of knowledge among medical fraternity make it more complicated. We can definitely remain in touch and...

Aleksandra - Yes... Modern Medicine is the first choice for all of us. I was just asking to knw tht any one tried some other form of medicine for CF. As for Kalydeco, i just hope that they could soon find a medicine for other mutations too. My daughter has F508( other copy i dnt know)

It is so heartening to see you people are so supportive and caring on this forum. We are also opting for CPT and doctor has advised to purchase a chest vibrator, which is a hand held device used for chest therapy. Had any one tried for alternate medicines like Homeopathy or Ayurveda for CF...

Thanks everyone for such a caring reply <img src="i/expressions/face-icon-small-smile.gif" border="0"> This forum is one place where i get some hope for my little child. Her genetic test shown her postive forΔF508 and homozygous.(I dont know wht it means ) One more problem with CF in india is...

Thanks Aleksandra and 'Aboveallislove' for quick reply and support. She is under treatment of Doctor, who is a very senior pediatric Pulmologist of New Delhi. Yes, Doctors here has conducted her DNA testing for Delta F (I don't know what it actually means and is it enough to know the gene...

Hi, I am Kapil from New Delhi, India and my 2 year old daughter has been disagnosed recently with CF. She is my only child and i am very much concerned about his health as in India, CF is a very very rare disease. I was looking around on internet about the information related to CF, when i came...